New diagnosis

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Hi, I've just been diagnosed with triple negative left side breast cancer and am due to have a lumpectomy next week probably to be followed by chemo and radiotherapy and to say that I'm feeling scared is putting it mildly. I'm also finding it difficult to deal with some peoples' reaction to the news especially those who say 'oh I'm sure that you'll be fine' Yes  I'm trying to feel positive and think that I will be but having seen my sister go through it I know that it's not going to be an easy journey. Buttercup

  • FormerMember
    FormerMember

    Hi Buttercup.  I know just what you mean by the it will be fine comment.  Much as we want to believe this it doesn’t feel like that, does it?  We want to and try to be positive and they mean so well.  But it kind of leaves me feeling a bit lonely or alone with it.  But then someone comes along and gets it. I get it. 

  • Hi  

    I totally agree I think it’s down to them not really knowing what to say. They want to make us feel better but we know it doesn’t work like that. I had a lumpectomy last Monday and am now recovering very slowly. I keep having to remind myself that I have cancer as it still seems unreal (I found out in November). I’m waiting for the results of the surgery and the plan for radiotherapy but my appointments not u til February seems so far away. My mum had breast cancer too

    it’s good to speak with others on here as we DO understand what it’s like to go through this journey and can hopefully support each other

    Sending positive thoughts to everyone on here x

  • It is also deciding who to tell,  some people have been really thoughtful and offered practical help or said let’s go for lunch but it feels a very lonely place today.

  • Thank you Rose. On a practical note have you any advice about bras post surgery please?

  • I bought post surgery bras from M&S which are very comfortable, supportive and a reasonable price. I went down a cup size as that has what the reviews had advised and it worked well. . You have to wear a bra 24 hours a day for a few weeks after surgery so you need to be comfortable. I usually wear wired bras but they tell you not to until you heal.

    Hope this helps 

  • FormerMember
    FormerMember in reply to Buttercup

    Yes it can be.  I feel that at times too.  But we all have each other and I take comfort from that. I wish we could meet people face to face to talk!   But know I’m here 

  • Can recommend the front fastenining nude coloured post op bra. Really comfy, following my lumpectomy and lymph node removal. From M&S. Daughter fetched my usual size. So glad she fetched it for me

  • Thank you Rose, I didn't know that you had to wear it 24 hours a day. M& S here I come.

  • I've had a few of those comments and I think the person saying it's either being dismissive of your diagnosis or they don't actually understand or want to know what your actually going through. It does leave you feeling lonely and wondering why did I even bother saying anything.  We all know what it's like and know it's not easy, your life's on hold, you have good days and bad and just wish it was all over.. Good luck Buttercup xx

  • Hi Buttercup

    I'm tripple negative too. I had my lumpectomy and sentinel node biopsy yesterday. Feeling a bit sore today but I'm up and dressed and about to head out for a short walk.

    I wore one of the soft t-shirt bras, like a bralet yesterday and I've got one on today. I didn't get a front fastening bra as they are so expensive so I've just been stepping into mine and it's been fine. The team didn't say to wear one all the time but I'm finding gravity makes me a bit sore so I'll be keeping one on day and night for the time being.

    I totally understand how you feel about some people's responses. I'm 6 months post diagnosis and I've found that some people just don't know what to say! From telling me it's only hair when it all fell out to the fact I shouldn't be negative about chemo when it's saving my life! I've found a new inner voice I didn't know I had and have been gently reminding people its not up to them to tell me how to feel!

    Good luck with your surgery and if I can help with any questions at all please just shout.

    Take care

    Lizzy x