HER2+ Metastatic Breast Cancer

Hi Nafas96fef5 

I have metastatic breast cancer but it’s tnbc and my cancer spread to my liver. I have been living with it since 2022. Treatments are cancer specific, so your oncology team is best placed to give you an idea on what treatments might work best for you and how many possible treatment lines are out there for you. Once I had got over the initial shock and the inevitable doom scrolling, I decided I wouldn’t ask for a prognosis. I try to live in the moment as much as possible, but as time has gone on and I have remained in remission, I feel quite a lot of hope for the future. I don’t want my oncologist to dash that hope for me. Once you hear a timescale you can’t unhear it and it becomes a use by date hanging over your head. If your cancer is currently stable, and the treatment is bearable, then try to sit with that for a while. The time to worry a bit more is if/when you have some progression or you can’t live with the treatment side effects. 

Hi I have ER+ and PR+ lobular metastatic breast cancer with bone mets.  I was diagnosed in 2024.  I am on targeted therapy and my cancer is stable.  I have never asked my oncologist for a prediction of how long I have left.  He would not know.  I don't want to know either because as time goes on I feel more positive and really think I will be around for a long time.  There are so many new treatments and trials coming out.  I just try and live every day and enjoy it.  Going on holiday to Portugal in September , doing things that I thought in the beginning were over.  It does get better as time goes on.  I have a list that when I think of a question I write it down for when I next see the oncologist otherwise I forget.  I have a good life and hopefully you will too.

Lee xx

Hi , I am in the same situation breast cancer and bone mets 5 places on my spine , 3 children 1 girl  severly autistic non verbal age 22 , one boy adhd and autism age 14 and my one 20 yr old all good with her , I have the exavt same issue with my oncologist i keep telking him I need to no even if its a very rough idea as I need to plan my daughter going in to care , which is a last resort and I wint do it until I absolutely have to , im a single mum with no family and few freinds as some of them dissappear when I got cancer im also a full time carer to my eldest daughter despite being in pain 24,7 I take tramadol tamoxifen and abecalicib chemo tablets ,I did 7 month iv chemo every 2 weeks and 15 radiotherapy session, 2 operation on breast as they missed some on the first one ,im constantly worrying if ill make it to my sons 19th so that I know hes safe 

J x

Hi, my wife had a very similar situation and she is alive (9 years ago)the cancer metastased and spread to the bone, lung and liver but was kept at bay with Trastuzamab chemo on 3 week cycles for 7 of those nine years. 

It was well managed and no traces of in the body but it moved through the brain barrier and into her brain where we have been chasing round for 2 years. 

Our situation is not the precedent its just an example. When our perfect domestic world came crashing in in 2008 we thought it was desperate and Id be bringing the kids up on my own and she wouldn't see the Men they would become. Luckily through some unbelievable help from some amazing people in the NHS and her guts and determination she has been able to watch our kids grown into young men.

Every person is slightly different, wish you well in your fight. It's cliche but you've got to enjoy those days that are normal and squeeze as much life out of them as possible. 

Massive love and luck to you all.