DCIS

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Hi Every I’m new here and hoping I’m doing this right. I have been diagnosed with DCIS 10mm high grade. I had lumpectomy surgery on Jan 17th and am trying to cope with the pain. Not too bad but nights are the worse as I can’t get comfortable now the anaesthetic has left my body

My follow up isn’t until Feb 7th for the results and plan which seems so far away and stresses me out worrying about it

glad to have found this site to chat and support where I can

  • Really hard, what did the hospital give you? X

  • They just said to take paracetamol and ibruprofen x

  • Ring your BCN tomorrow .  I had 11mm of DCIS removed.  My scar is on top of left breast.  I was advised to sleep with a supportive, padded bra on - mine underwired as the wires nowhere near scar, as I'm a G cup and support stopped pulling on wound.  The pain is from nerves cut and protesting .  Use pillow, cushions as well to keep you more stable and protected.  You maybe more comfortable sleeping propped up or alone if sharing a bed .  

    Nights are when the anxiety gremlins creep in and can make your awareness of pain worse too.  Listen to podcasts on YouTube or crime mysteries !  I find them distracting .   I'm almost 7 years post surgery xx

  • Hi. The hospital sent me home with a supply of paracetamol and a smaller supply of codeine.  I had a therapeutic mastectomy and 4 sentinel nodes removed so had a scar under my arm and around my areola. For the first few nights I took codeine just before going to bed and this seemed to take the edge off the pain more than the paracetamol.  

    For the first week during the day I took paracetamol every 4 hours rather than waiting for the pain to set in.

    The night discomfort was probably worse as I'm a side sleeper.

    Hope things settle soon for you 

  • Yes contact your breast care team, they maybe able to give  you something stronger, codeine maybe? Xx

  • Thank you for getting back to me. Yes I am doing all these things. I bought the support bra   And have been wearing it since the surgery. I usually wear a wire one as I’m an E/F. My scar is in the same place too.

    The nurse is due to telephone me today so I will ask about the pain relief

    Hope you are now ok, sending best wishes

  • Thank you for responding to me. I think that’s where I’m going wrong I am waiting for the pain to kick in before I take the tablets I’ll try automatically taking them. I am lucky in that my husband works nights so I have the bed to myself but toss snd turn all night trying to get comfortable. So scared that I will break the glue and internal stitches.

    The nurse is calling me today so  I will ask about the codeine

    sending best wishes and thanks for your message

  • Hi, I had a right mastectomy with removal of one lymph node on the 12th january, I still have my drain as it is still draining approximately  50 mls daily. I have considerable pain in my axilla due to drain , does this go once removed.