Hello everybody
I’ve been reading posts on this forum for a few weeks now and have found all the information really helpful .
I was diagnosed with ILC grade 2 in my left breast in November after my first routine mammogram ( unlucky!) I must admit it was a terrible shock and it’s taken me this long to almost get my head around it . The consultant flew threw a treatment plan and said I’d be called with an MRI appointment . The BC nurse said I’d have surgery before Xmas . This hasn’t happened probs because of the backlog and my MRI was done on 22/12. I get my results on Thursday however the BC nurse called last week to change my appointment time to earlier on Thursday as she said the MRI had picked up something on my right breast and I need an ultrasound . Eeek!
Her parting words were “ now don’t worry “ . Needless to say my stress levels have hit an all time high and I have never known anxiety like this in my life .
has anybody else had this before and has it turned out to be a false positive ? Maybe I’m clutching at straws but I really don’t know how I will react if I’m told I have bilateral BC .
Hugs to all in this horrible situation
xx
Hello Looktothefuture
Sorry to meet you on here and to hear that you are having such a miserable time of it. All of us have felt the agony of waiting for results of various tests and MRIs. If there is something unusual going on on the other side, it is good that it has been picked-up and that they are going to do follow-up investigations. I have heard medics say that most 'things' in breast turn out to be nothing to worry about. The fact that the MRI is not showing that it is a definite nasty gives room for hope that it is as the nurse suggested, nothing to worry about.
Sending you big virtual hugs and hoping for a good outcome from the extra investigations.
Let us know how you get on.
All the best
WallyDug
Hiya Wallydug
what a great name ! Thanks so much for your reply . With any luck it won’t be anything to worry about . I’ve got everything crossed and more ! You’re right in the fact that they are carrying out full investigations and maybe it’s best knowing now rather than 6months down the line .
Roll on Thursday
xx
Not me, but I know of someone whose initial results were beyond suspicious, her team were nearly certain they had found cancer in her breast. It was only when a second biopsy was taken that it was found out that nope, in spite of all the alarming scan findings and a first inconclusive biopsy result, nope, that was not cancer after all.
Hello Looktothefuture
Sorry you find yourself here , the waiting for results is really awful , we can all relate to how you are feeling and will get lots of support in this forum .
I have lobular breast cancer also left breast, my scan like yours picked up a suspicious area on my right breast but this turned out to be a benign area.
Hopefully this will be the case for you also . Good luck with your results and sending hugs and best wishes.
Hiya
many thanks for your reply . I’m so hoping that this will be the case . I know what folk mean now when they say it’s a battle . I’ve decided no matter what I’ll ask them to biopsy tomorrow anywnd I will park myself in the hospital until it’s done . Another week of being completely nuts waiting on results is doable . Most people wouldn’t see any difference in me anyway
Thanks again xx
Hi Missi K
Thanks for your reply . I so hope mine has the same outcome but who knows . Life has a habit of throwing massive great big curveballs !
can I ask how far on you are from Initial diagnosis ? My “ pathway “ as it’s called has been full of great big potholes so far and I have no idea what’s coming next . Communication hasn’t been fantastic by the consultant or BC nurses so far , again maybe due to the pressure the NHS is under , and I just wondered if you found that once all the results were in you’re treatment plan was fast and furious ?
xx
I’m really sorry your pathway hasn’t been as good as it should have . I really can’t fault my care so far , The breast team at my hospital have been fantastic really.
First diagnosed in July , numerous biopsies and scans , double mastectomy end of September. Couple more scans then auxiliary clearance on 13th December.
Had telephone conversation with oncology yesterday and waiting for an appointment regarding starting chemotherapy.
Its all very overwhelming and not sure how any of us ever get through it but it’s best to take one day at a time.
You can contact me if you like as I am further down the road treatment wise and will help with any of my experience of my journey through this . It’s always nice to speak to someone who’s going through a similar diagnosis.
Thank you so much . I’m pleased you’re care has been good and I think once things start moving here it may be the same .
I think you’re right in that none of us know how we cope , we just do and one step at a time is the way to go !
I’ll see how it goes tomorrow and get in touch if I need to if that’s ok ?
same goes for you too even if it’s for a rant ( I’m good at that if the mood takes me )
xx
Well you can't help but worry. Whatever IT is it's best to know and get the right treatment. Be the road long or short remember this is a very recoverable cancer
My surgery was 4 days after my MDT appointment. They really want all the diagnostic tests to make the plan
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007