I had a routine mammogram in November recalled on 13th (unlucky for me!) had breast & lymph node biopsies
Diagnosed on 22nd with Grade 3 invasive ductal cancer Oest 8 Her 2 positive, 20% Proliferation 2 or 3 lymph nodes affected
Saw surgeon and nurse option surgery then chemo or Herceptin/chemo then surgery. I asked what he would do he said the latter, I agreed. CT scans of chest, abdomen and pelvis and breast MRI done last Weds and Friday, no results as yet. MDT meets Tuesday but no news today. Have an appointment to see the oncologist on 18th January.
Am scared the waiting is just awful Christmas and New Year was cancelled unfortunately I had the most awful cold, chest & eye infection, caught from my Grandkids so we had to shelve plans even before my cancer diagnosis, two lots of antibiotics and 3 weeks later am just feeling better, wasn’t Covid!
Am 56, no kids my husband has 2 grown up children hence my 2 grandkids they don’t do step, just grandma!!
The waiting is just awful, my poor husband seems more depressed than me! We recently lost my brother’s wife at the age of 58 due to endometrial cancer that had spread, she was misdiagnosed in primary care, her funeral was in October 21. My poor family just don’t need this as well
UPDATE today 6/1/22
Just got a call from my nurse and Oncologist appointment brought forward to Tuesday 11th at 09:20, she gave me the impression that nothing else has changed so am hoping scans are ok! (She obviously couldn’t tell me but ) x
Hi Amelie11 so sorry to hear of your diagnosis, but you've come to the right place for support. Your diagnosis and treatment plan sounds very similar to mine, check out the details on my profile by clicking on my username. I am now 11 months past my initial finding a lump and I am doing well. The chemo killed all the active cancer cells prior to surgery and I am now into preventative treatment.
My husband, who is much more introverted than me, struggled, especially at first. Once treatment started and we got through the first round of chemo, it was evident I was coping ok and he became easier with it, but I think it's often harder to watch someone else, and must be more so with your recent family history. and the waiting is by far the worst phase in my view.
My key piece of advice at this stage is to resist the temptation to Google anything. Stick to reliable websites like Macmillan’s for factual info and explanations and don't let Dr Google scare you with the extremes.
Best of luck as you get started with treatment
Thank you so very much and I will read your profile, really appreciate your advice
I was diagnosed Dec 8th and been through the exact journey your experienced.
The words of my Mcmillian nurse really helped me over the Christmas period.
Even through it feels like nothing may be happening on our side every step in in place and the multi team meet to discuss and things are going on.
Starrted Chemo today, feeling OK. I have a 3 year and 4 year old your grandchildren will be fine they take cues from you and find a welcome distraction.
Good luck with your results
Jo xxx
Hello, I have a similar diagnosis although I'm HER-. The waiting is the worse bit.
I had my MRI on 22nd Dec to determine whether the 2 cancerous lumps in my breast are linked. I got a phone call on Tuesday asking me to come in for my appt to discuss them today. My hospital seem to work on a 2 week basis as it was the same after my biopsies. I heard on the Tuesday that results were in and had appt the following Wednesday.
Keeping my fingers crossed you'll hear soon. Xx
Thank you I hope your appointment went well fingers crossed for you too x
Hi Amelie11
My heart goes to you and your family. Please keep your chin up and you will feel stronger as time goes on. I had same diagnosis as yours 2 years ago.....it all felt like a bad dream..... before I knew I had a mastectomy and ended up having chemotherapy then perception treatment.....tomorrow am due to start on Neratinib n am dreading it.... but at the same time I know all will be well. I have 2 children and the day I broke the news to my husband about my cancer diagnosis....I remember him saying 'we will get through this'....I know you will too...keep your faith n keep on smiling......at first I cld not overcome the thought of losing one of my breast...but once I had the surgery I got used to it.....I won't lie ....I did cry a lot....in the beginning I kept myself busy with work...later during chemo it was difficult but got through it... I always dedicated a lot of my time to everyone but during chemo it was me time....I made myself tough n kept myself busy spiritually n physically.... my telephone buddy was wonderful n she is my soulmate now.....It was nice to be able to talk to someone.... trust me having a telephone buddy is very good. .. it makes the journey easy... when I cried my husband n children cried too along.. .n when I smiled they did too....I know you are a strong person n you will pull through this....
Hi Amelie11
Good morning,
Thank you for your kind wishes. Yes, waiting to hear from MDT can be very daunting and I remember feeling very empty as if everything stood still.....I didn't have interest in anything when was going thru emotional turmoil...... taking a walk, spending time with my kids, watching Tik Tok n YouTube distracted me somehow.....this was my husband's idea as he didn't want me to be sinking in depression..... I did have tearful moments especially in the night n in the day I just kept the phone near me.....the phone call you receive is from funny numbers so keep an eye on the calls you receive..... today it's Thursday...am sure they will call..... with a cancer history in the family I was not surprised with my diagnosis.......my cousin from France had rang me n she was very upset.....she said among all the cousins why me......then I replied to her who should have diagnosed of cancer among all the cousins if it was not me.....she went quiet n I said I was glad it was me.....n I was the chosen.....I told her I didn't want any of my siblings or cousin to have my experience n there I just embraced it.....you are strong Amelia11 n you are loved....close your eyes n cherish all the good times n laugh out loud about the bad times.....you are in my prayers.... remember whatever is ahead....all will be well....it might be tough.....but remember you are a strong cookie!
Hi Amelie11,
I was in a very similar position to you last September. My 1st chemo had to be delayed as I had a bad chest infection etc - not Covid! Two lots of antibiotics down and I started the chemo but my journey has been plagued with recurring coughs and high temperatures and further lots of antibiotics.
I would caution you to try to make sure you are at your fittest relating to your chest infection as for me, it has been difficult to fight once low immunity steps in and has actually been more of a problem than the chemo itself!
good luck!
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