Spiral of panic - why did I read info?!

FormerMember
FormerMember
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Hi All, 

New here - I have a preliminary breast cancer diagnosis of grade 3, stage 1/2  - oestrogen/progesterone positive, 1.5cm by 2cm, lymph nodes look clear on ultrasound. But. My MRI brought up areas on my left lung that need further investigation. I had the CT today and had managed to convince myself that because I have no symptoms and my lymph nodes are clear that I am unlikely to have lung cancer to add to the mix. I've now stupidly read about secondary lung cancer and how closely linked it is to breast cancer that I am back in that place where I feel like I'm staring down the end of a barrel. 

I'm not able to get my results until next Thurs/Friday earliest due to Christmas lag - how on earth do I get through until then? I feel physically sick. I've been pretty together until now but I'm now so scared. Tell me it will feel better in the morning, please! 

  • Hi there, so sorry you find yourself in this uncertainty, I've been there and it's horrid. All I can share is my experience. I too googled secondary breast cancer and got myself into a right state. I spoke to a friend who is a radiologist and he spent a lot of time reassuring me that the risk was very low and even if it had spread, it's still very treatable, but the CT scan results wait was the hardest.

    Somehow you need to put your fears “in a box on a high shelf” and try to distract yourself until you have the results. I know this is easier said than done, but it helps me to be busy and working.  Best of luck x

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  • FormerMember
    FormerMember in reply to Irishgirl16

    Thank you - I'm going to have to keep myself really busy. So bloody frightening. 

  • I read well written popular novels and went for walks with someone to stop me thinking. I was so scared I developed pain across my shoulders and chest which I thought was spread,  and I lost 5lbs in weight! (Wish I could do that now on Letrizole). A magpie landed on the window beside me one of the days (a sign of death in Scotland), and on the way to get the results our bus was held up outside a church because of a huge funeral with horses etc  I'm still here (so far!) And that was May 2019, when the results were clear. X

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Waiting for the results of the CT scan is the absolute worst part and not much anyone can say to make it any better for you, other than for you to know that we've all been through that too. It was by far and away the worst 2 weeks of my life (took a week to get the CT scan appointment and then a week for results). That was when I had the most serious conversations with my husband too, the ones you don't think you'll be having for another 20 or 30 years.

    Try to keep as busy as you can. I was working which was a distraction but the weekends were horrendous. Walking is good and just being outside is good for the mind.

  • Hi Best boob forward

    Welcome and sorry to hear that you are facing a diagnosis of lung cancer on top of the breast cancer.  

    Have you tried meditation? If you haven't why not give it a try, I did it on days that I was feeling wobbly and found that it helped.  Calm radio or Headspace are just two of the aps that you could try.

    Wishing you the best of luck with your results next week and hopefully things won't be as bad as you are expecting.

    Best wishes

    Daisy53

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  • I heard from my friend...one wise advice:

    Worry about tomorrow's worry tomorrow. 

    We all have that fear, but if you continue to think so, you will miss out on life and living. We all have our journeys and fight...I wish we aren't in this place but when you are here, take a day at a time. No one ever knows what happens in the future, and every day carries risks foe everyone....not only those with bc.

    Sending lots of love.

    Cx

  • FormerMember
    FormerMember in reply to Londonmumof2

    Ha! I seem to be only seeing bloody single magpies at the moment, and every time I turn on the telly there's a film featuring a child who's lost a parent in some tragic way! Funny, as I don't think of myself as superstitious but clearly I am x

  • FormerMember
    FormerMember in reply to Daisy53

    Thank you Daisy, I will try meditation - it's definitely worth  a try. 

  • FormerMember
    FormerMember

    Sometimes Google really isn't our friend and the fear of the unknown is terrifying and worrying but they are investigating it and when you do get your CT results you will know for definite what the score is and deal with then when you cross that bridge. 

    I'm dreading my MRI results when they finally get in as I'm convinced it's going to be worse than my 2 tumours in my left breast and 1 in my lymph node and now my right breast hurts - go figure 

    Can you distract yourself with books or perhaps some games nights with friends. Sometimes inappropriate shenanigans with friends and a bit of dark humour can override the worry and fear you have xx

  • You're not alone. I so hate daytime TV with the funeral plan adverts and also affordable care homes. I know these things are real and people rely on them but like u said I never knew till now I was that superstitious lol

    I would just keep to rom coms for now lol everything else gives me nightmares. 

    We need to have some kind of distraction although everything brings me back to BC! 

    Cx