New to forum - Er+Pr+HER2-

FormerMember
FormerMember
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I am new to the McMillan cancer forum and wish to say hello to everyone. I would especially like to chat to those who are Er+Pr+HER2-, metastatic, receiving Abemaciclib+fulverstrant+denosumab.

  • FormerMember
    FormerMember

    Welcome, I don't have experience in your specific cancer but I'm sure some of the ladies will be along soon to share experiences with you. Wanted to say hi and not let the post go further down the line and people may miss it xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi 'I like coffee' and thanks for your reply. There are so many interesting posts here and it's heart-worming to see the success stories. xx

  • FormerMember
    FormerMember

    Hi Sonja J I think that's the cancer I have . But not receiving treatment yet had surgery 7 weeks ago got oncologist on Thursday this week . Have you had your surgery yet ? 

    Jayne 

  • Hi, my mum has the same cancer type as you, hers had spread to the lymph nodes, no further.  Her chemo regime is different to the drugs you’ve mentioned. If I can be of any help let me know. Lisa 

  • FormerMember
    FormerMember in reply to Lambs all

    Thankyou Lisa take care X 

    Jayne 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Jayne, I did have the surgery 20 years ago, lymph nodes taken, 5 years on Tamoxifen but cancer came back in 2015. Since than I had Letrozole and after discovering metastases in my Liver I was put on abemaciclib+fulvestrant.  Not all cancer come back and if yours did not spread you may have very good prognosis. Wishing you all the best on Thursday. Keep well and stay strong. Sonja

  • FormerMember
    FormerMember in reply to Lambs all

    Hi Lisa, my cancer spread to lymph nodes first and the doctors stopped the spread with Tamoxifen for 5 years. Unusually, cancer came back 13 years later and since than I had Letrozole and after discovering metastases in my liver I was put on abemaciclib+fulvestrant. It's a new drug and I was interesting to see how others are managing the regimen. 

    I hope your mum is keeping well and that the drugs she's on are controlling the cancer. Wishing your mum and you all the best. There are so many new discoveries, fingers crossed they become a reality.

    Sonja

  • Hi Sonja, 

    If your cancer is metastatic you may be better posting on the secondary breast cancer forum, there may be ladies over there that are on the same drugs. I have metastatic ER+HER2+ cancer and have just finished 6 cycles of chemo (Docetaxel) and will continue with three weekly injections of hormone targeted drugs. So similar to you but different drugs. 

    I hope someone on the secondary breast cancer forum can help you

    Judith x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Sonja,

    Thankyou for your reply gosh 20 years ago and 6 years since it came back you have been through the wringer but still keeping well I hope , thanks for good wishes for Thursday I will let you know my appointment is at 3.15 pm oh the worrying is back X 

    Take care 

    Jayne 

  • FormerMember
    FormerMember in reply to FormerMember

    Jayne

    Only two days to go Four leaf clover keeping my fingers crossed for you. Sonja