Hi everyone
I'm after a bit of advice.
My mum was diagnosed with breast cancer a few years back, she had treatment and was given the all clear. Unfortunately last year she became unwell and we discovered the cancer had come back this time in her lungs. It has since spread to her liver, bones and brain. She has had some injections for the bones and has just finished a week long course of radiotherapy on the whole of her brain.
Shes understandably very tired and often gets confused about small things like the day of the week, forgetting things.
I guess what I'm after is any information from people who have been through similar. I'm being very careful not to go on dr google because I'm aware it's not always accurate.
I know every person is different and responds to treatments differently but I'm feeling a little overwhelmed by it all. Especially as I lost my dad at the begining of last year to kidney cancer.
Everyone keeps telling me to speak with her and her doctors etc. But my stepdad goes with her to her appointments and I dont want to cause her stress by asking loads of questions.
Thankyou you for any help you give.
Hello Ackaademis
I'm sorry to hear you news about your mum . You sound as if you just need some clear answers to your concerns. Can you somehow ask if you could go with your mum to one of her appointment's with your step dad as well? It won't be easy but it might help a lot. Do you know what the oncologists have said to your mum about prognosis? I'm sorry you are feeling so overwhelmed it's a bit like my daughter felt at the beginning of my cancer journey. Why don't you ring your local Maggie's center and get some counciling for yourself so that you can find out the best way to look after yourself and your mum? Maggie's like Macmillan look after families as well as patients. Keep strong and remember you must look after yourself in order to look after your mum x
Take care thinking about you Jayne X
Hi I’m so sorry to read about your mum and the treatment she is having to go through. It’s sounds like they are doing lots to help her but I get that you don’t want to ask her lots of questions. I just wanted to suggest that you could maybe ask your stepdad to record the appointment on his phone, then not only can you listen to them after but I find that there’s a lot to take in at appointments and probably a lot that they are forgetting too.
Macmillan offer lots of help for families so definitely don’t be afraid to ask for support for yourself. x
Because of the Covid restrictions I wasn't allowed someone to come with me, so when I've been to my hospital appointments I have phoned up my relative / friend and put the phone on loud speaker so they can listen in ask the occasional questions and take notes for me. Hope the next appointment is easier for you all.
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