Hello everyone

FormerMember
FormerMember
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Hi everyone. I am new on here.

in 2014 I was diagnosed with dcis in my right breast. I had a lumpectomy and radiotherapy for three weeks and the annual mammograms. The cancer was 12mm so found early and very treatable. On the 15th Jan 2021 I was diagnosed with HER2 positive grade three stage two breast cancer in my left breast. I had six months of chemo and am now recovering from the mastectomy with reconstruction that I had 4 weeks ago. I will have 1 week of radiotherapy and six months of targeted treatment every three weeks plus six monthly bone strengthening infusions for the next year and half. When the surgeon took out the breast tissue he found dcis but this time it was 60mm in size and had some regressed cells in it. This has left me worried a lot. Not because there maybe some left as he is top of the tree and done both my surgeries luckily but for the dcis to get that big and be regressed it must have been there a long time so I don’t understand why it wasn’t picked up on any of the many mammograms and ultrasounds I had due to my left breast becoming two sizes bigger and very painful. Anyone else had this 

  • FormerMember
    FormerMember

    Sorry I should have said that I wasn’t previously told I had dcis in the left breast until after the mastectomy and the chemo was successful in killing the HER2 positive cancer that was 34mm

  • Hi, it's good to hear you are working through your treatment. The good thing like you said is the chemo worked and when you had your surgery are saying that they found a large are of dcis and why wasn't this seen on scans  best wishes xx

  • I'd had a mammogram about 20 months prior to me funding a lump, which turned out to be Grade 3 and 55mm.   Assuming the mammogram missed it,  it must have grown very quickly in that time.  I guess a mammogram doesn't pick up everything or it grew super quick.

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  • I can’t say of course if your mammograms missed it but I had 6 years of mammograms and only one missed year. My last mammogram was in May 2019, in May 2021 I was diagnosed with my grade 3 HER2 + with lymph node involvement. Because they had mammograms going back to 2013 they could say definitely it wasn’t there, was just very fast growing sadly.

    My first DCIS in 2013 however wasn’t visible on mammograms! This was because it was hidden behind my nipple tissue which is thicker in younger women x

  • FormerMember
    FormerMember in reply to Irishgirl16

    Thank you it is a worry isn’t it that they get missed especially like in your case a grade three cancer 

  • FormerMember
    FormerMember in reply to Anna12345

    Thank you that does explain it as they have told me the tissue was too dense to get a true reading even on the mri scan. Thank you x

  • It’s frustrating they can’t always see it, I guess no system is perfect x

  • FormerMember
    FormerMember in reply to Anna12345

    It is frustrating but as you say no system is perfect. Just worrying though but I’m still one of the lucky ones as they did kill all of the her2 positive cancer with the chemo and the mastectomy got rid of all the other cancer so all I have left is the radiotherapy the targeted treatments and the bone strengthening infusions xx

  • FormerMember
    FormerMember in reply to Shaz52

    Thank you @shaz52 I am one of the lucky ones to have had the aggressive cancer killed by the chemo and all the dcis cancer removed with the mastectomy. I only have the radiotherapy, targeted treatment and bone strengthening infusions to go which will all be finished and done by 2023 xx

  • I’m pleased they got it all, all we can do is hope and keep going! All the best of luck xx