Advanced breast cancer... you must be joking

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Letrozole, palbociclib, denosumab drugs say so not joking. 3 weeks since diagnosis what a roller coaster ride. Top tips welcome. 

  • Hi, welcome to the website no one wants to look for!  I'm just through chemo and had surgery this week, so a few steps ahead of you. The first few weeks were the worst, the uncertainty for sure, but for me once I had a plan it got easier.

    Blogging has helped me, and this might be of use

    https://community.macmillan.org.uk/cancer-blogs/b/one-life-live-it/posts/chemo-side-effects---hints-tips

    good luck 

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  • Hi - so sorry you’ve not got just a breast cancer diagnosis , but a secondary one at the same time. I’m not in the same place as you, but do take heart from the fact that there are many women living well with a secondary diagnosis ( Jane Devonshire won master chef after her secondary diagnosis ) if you google her you can read her story. There are many fantastic drugs around now , and more coming along all the time , that can keep people alive and well for many, many years. There is a Secondary Breast cancer group on Macmillan , although not as busy as this one , and several ladies on here who have lived with the secondary diagnosis too who may be able to help you .  is one of those special ladies. 

    I hope you can come to terms with your diagnosis and have some support to help you with this ? The Macmillan helpline will also be able to offer you support. 

    Very best wishes to you , and hope your treatment isn’t too hard.

    Jo xx

  • Hi, thanks for your kind words . Yes, found the secondary group i think. IT skills not great. Will reach out to the contact you gave me. Thanks again. 

  • Thanks, I'll check it out.