Well I was promised these biopsy results but got appointment letter with NO RESULTS , Is this normal ?
The system needs to change , women worrying is no good for stress levels , before I had that biopsy I asked her when I d get the results and she replied by telephone !!! 7/10 days got phone call ( with appointment no results ) so im pushing for the results as I want to know what im up against
Hi
They don’t normally give results over the phone, but at an appointment in person, this is because the results don’t sit alone, they feed into treatment plans etc which will also be discussed at an appointment - not sure i am understanding completely where you are with things and when your appointment is or if it is a telephone appointment?
I was promised results would be 7/10 days so allowed for COV I’d delays then on 16th day got only a secretary’s phone call for an appointment !!! Which is 23rd August so that’s almost 7 weeks from biopsy and is far too long to let anyone worry I have phoned the PALS and told them no results , then no appointment , no one should play medical mind games with anyone , it’s unprofessional and In humane , sorry it’s my opinion and I will stand by it
I’ve read too many stories of people kept waiting , no wonder mental health is escalating
You are right to feel angry, waiting for any result is one of the hardest parts, you’re mind is already in overdrive thinking every worse possibility…..I know my stress levels were sky high waiting ( and I count myself lucky they came within 2weeks )….it certainly does feel inhumane that you have waited so long.
Good luck x
I can only assume then that the results will be bad at the appointment and was PROMISED results via telephone so I have rung PALS again this afternoon as I really need to know what I’m going to step into on the 23rd August and alone as-well which is making me worse
I don’t think you should presume results will be bad, I went for appointment alone ( my choice) and results were no worse than what I had expected…..further test results from CT and bone scan were also given ‘face to face’ and they were thankfully all clear….so, I wouldn’t equate only telephone appointments mean ‘better’ news. x
Hi Flipflop59
I was the same as Mrs Polly. I have had a mixture of face-to-face appointments and telephone ones. My CT results were conveyed face-to-face and were clear, so it doesn't follow that an in person consultation is automatically bad news.
I was advised to bring someone with me for the earlier results of the biopsy appointment. Because my husband had passed away 6 months before my diagnosis, I took my best friend with me. Because of Covid controls she had to sit in the atrium of the hospital, as only I was allowed to go through to the clinic waiting area [a smaller space]. However, when it was my turn, I was asked if anyone was with me and their name and the nurse went out to bring my friend into the consultation room. I have to say it helped me a lot to have someone there whom I knew. I think that it is perfectly reasonable to phone ahead to ask if you can have someone with you at the appointment to get the results. My friend was a good 2nd pair of ears and it was she who was more able than me to ask the questions that I would have asked if I hadn't felt like a rabbit in the headlights. I did not get unexpected news but it took time to come to terms with it when my cancer diagnosis and the cell-type was confirmed.
If you would fell better with someone with you. Go for it. You have nothing to lose and everything to gain.
Wishing you all the best
WallyDug
The waiting does drive you crazy that’s for sure! Hope you manage to get it sorted and get results sooner rather than later x
I was told I had to go in by myself husband cannot come in with me ! I have rung the hospital again today and the woman I was told knew about my annoyance ( knew nothing about it ) she then said what’s your name again ??? Then said she is trying to get hold of a directorate !!! I said please put my biopsy results in letter form and send them to me ( as I was promised at my biopsy )
so I will wait and hope I get the results before the 23rd whether good or bad I really need to know so I can get my mindset
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