Hello champions
Diagnosed with breast cancer about 10 weeks ago.
After what feels like forever and lots of investigations, I have the following information:
Right breast 68mm DCIS affecting the lower right inferior pole.
Left breast 33x33mm DCIS in lower inner quadrant, with 'small invasive focus'.
I'm HER2 negative.
Oestrogen/progesterone positive.
Nil lymph node involvement found so far (on examination or ultrasound).
As I have small breasts, a mastectomy on the right has been recommended.
I have been offered a lumpectomy/MICAP flap reconstruction/radiotherapy on the left, but it has also been suggested that a mastectomy may be more appropriate as they might not completely remove everything during the lumpectomy.
I am therefore considering a double mastectomy, and reconstruction either immediate or delayed, during which they will check the sentinel nodes.
I will also require hormone tablets. Can't say I'm looking forward to these, as I already have lots of menopausal hot flushes. But I'm grateful that I will be alive!
I have been advised that if I have a mastectomy on the left, then I won't need radiotherapy. Has anyone else experienced this? I don't particular want radiotherapy (who does?), as I'm concerned about it affecting my heart (I have arrythmias and valve issues). However, I'm a little surprised (and grateful) it's not required.
My surgeon says I won't need chemo either. I have read somewhere that ladies who are HER2 negative and hormone positive often have oncotyping to determine their reoccurrence risk/need for chemo. Is this something other lovely ladies have experienced?
I'm waiting an appointment with the plastic surgeons at East Grinstead.
Otherwise, I'm a district nurse, so it's going to get some getting used to receiving rather than giving care.
My hubby passed away 3 years ago, so I live alone.
I recently returned from living in Australia for 15 years (hate heat).
I'll be 53 next month.
I look forward to hearing about your experiences.
Lots of love.
Christine.
