Stage 3 HER2+

Hi rumple01

I have just been diagnosed stage 3 in the right breast and lymph nodes ct scan tomorrow to check if it's gone to my lungs and bones you sound so clear on what's happening to you how are you doing this you amazing woman, I am a car crash didn't know it was possible to cry so much. Is a pet scan same as a ct scan? I'm praying mine will be clear!

Hi again Rumple01 

Have a read on my profile . I had mastectomy first then results from op biopsywere Her2 positive grade 3 no lymph nodes involvement.

This was in 2019 second year mammogram on Thursday . 

Treatment plan was chemo EC x 6 ( finished in Dec 2019 )  then Herceptin jab x18 ( finished Jan 2021 ) Bisphosphonate infusion x 6 due to finish May 2022.

All sounds mega when first told but it's all manageable take one treatment at a time don't be worrying about things that are in the distance . 

Youll be fine 

keep posting 

Hi Debimay, 

i have had my moments, many of them but I found that once I knew the plan and got PET results it was much easier to deal with. My oncologist is great, very factual and methodical, writes everything down fir me, so I can refer to it and told me even before we had the PET scan results or confirmation of HER2+ what the treaty would be. I find that very comforting to have someone who just knows what to do. He said we will check if it’s shrinking after 2 rounds of chemo and if not we adapt. My cancer is left breast and lymph nodes, likely will have a mastectomy after my chemo, though could be a lumpectomy but due to the cancer involving the nipple the Dr says I will get a nicer reconstruction with a mastectomy, but I will decide once we understand the situation at that time. I have decided to put my complete faith and trust in my Dr and the team looking after me and stay away from scary sites and also survival rates. He said, this is treatable and doable so we will start and just keep going and pray for no major blips along the way. I also pray that your CT is clear, I think a PET and a CT are similar but different ways of imaging. The waiting for results was the worst, the mind is a wonderful and frightening thing. 
If you need a friend who isn’t family to talk to just say x 

sending you love and positive thoughts 

look after yourself x 

Thanks for telling me about your profile. So great to read a positive story about HER2+ and just taking it a step at a time has to be the way to do it as the enormity of it all is overwhelming. I am focusing on the now and taking it as it comes, I hope to stay so positive Good luck for Thursday would love to know how you get on. I will be thinking of you and sending positive thoughts xx 

You just made me cry, thank you so much I am so lost at the moment I don't understand technology but will try to log on tomorrow to see if I can find you again. I have read through a few story's and as horrible as it may sound I am not alone so many other people are going through this, thank you keep strong! Please tell me that tomorrow ha ha x

Hi Debimay & Rumple01

I to was diagnosed Her2+, I had 7 rounds of Chemo, 3 FEC and 4 TCHP, I had one lymph node affected, the chemo shrank the breast tumour and cleared the lymph node, I had a single mastectomy last week, surgeon said surgery went well, I have an apointment in a few weeks to see what happens next …,

I to read Northerners profile when I first came to this site, reading it spurred me on, she’s a very special lady xx

Everyone is so positive here thank you I need to take myself to a quiet corner and have a little word with myself I think! We got this!!!!!!

Hi Rumple01 and  I have now tagged you both so this conversation will show in your notifications . When you are replying to any post use @ then name of person you are replying to... so @ Northerner but no gap after @ it will highlight so you click on it and that person will be notified of your response .

As well as Crawler and myself there are a few HER2 ladies on here . Have a browse around the threads there are some interesting ones . Try the Awake thread under chat discussions . Lots of entertaining posts we like to have a joke or two on there .  It will help you pass the time whilst waiting for treatment etc 

Hi Crawler glad to here you're doing ok and feeling ok after your MX can't believe I'm at two years post MX . Hope your next app goes well and a plan put in place .

Hi Northener, I’ve already had chemo, then surgery last week, so have to see if radiotherapy is on the list, Herceptin for a year to …. Will find out soon how surgery went x