Port or PICC

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Hi

Three years ago I was diagnosed with HER2 positive breast cancer which involved year long treatment. Chemo which reduced quite a large lump so I only needed a lumpectomy, followed by radiotherapy.

The chemo resulted in me being left with very ropey veins. Trying to get blood out or anything in proved quite challenging for many nurses.

in December I was diagnosed with secondary breast cancer in the brain. Again I was fortunate that caught it small and was operable. I then had 3 stereotactic radiotherapy sessions.

Yesterday I started the first of nine weekly paxitaxel chemo treatments along with three weekly targeted treatment. On Tuesday I had to give blood sample which resulted in three attempts to fill three vials, leaving me with some nasty bruising. Then yesterday four attempts to get the cannula in. During one of the flushes I noticed my vein looked bruised and puffy. The nurses thought the cannula had pierced my vein so they had to move to another area.  As I had nodes removed from my right side they can only use my left side.

I had previously spoken to my consultant about my veins and she did recommend getting a line fitted. I said I would see how it goes before deciding. Needless to say, it was a nightmare, for me and the nurses, so I am going to speak to my consultant about getting a line. My nurses also recommended this.

What I would like to know is how others have who have had a line find it? Which would they recommend?

Any advice would be greatly appreciated.

Y

  • A pic has been suggested for me too and they’re going to see how my first chemo goes before deciding. I’ll keep an eye on your replies too. Good luck xx

  • Hi Monalisa

    Funnily enough I was sat opposite two ladies yesterday one who had a PICC line and the other had a Port. I know, where I am we have to pay for the Port. 

    I didn’t really get a chance to talk more to them about their lines so was just looking for others opinions.

    Good luck with your treatment too xx

    Y

  • Hi   I don’t have PICC line experience but do have a port and it’s been really good. If you can describe such a thing as “good”...

    I can bath and shower without giving it a second thought or having to wear any kind of cover over it - think with a PICC you have to wear a sleeve over it to keep water out.

    Plus no one else but me and my husband can see it! 

    Nurses use it to take blood and administer chemo.

    Wishing you all the very best with your treatment. 

    NBl x

  • Hi NBI

    Thanks for that.

    I like the idea that it’s hidden, would be worried about catching it if it sticks out, plus with weather being better would rather it wasn’t easily seen.

    Sounds like port is the way to go.

    Good luck to you too

    x

    Y

  • Former Member
    Former Member in reply to Bubblebelle

    I was initially offered PICC but asked for port instead. A bit more of a procedure to fit it, and it was uncomfortable for a few days after fitting. But now it’s brilliant!  Chemo went in, blood tests taken, anti Her 2 will go in, all very painless.  Port is waterproof so shower etc is easy, I have been able to continue canoeing.  I hardly feel it , though just occasionally it catches on clothing, but not a big problem.  It isn’t visible at all, as is quite far over to the side, and a long way down from the collarbone.  I was offered choice of which side it should go and opted for opposite side to mastectomy, which then meant it was out of the way during radiotherapy.  I would definitely recommend.

    Judith

  • Former Member
    Former Member in reply to Former Member

    one other advantage. Port only needs flushing every 4 weeks. I think PICC is every week, which might be annoying in gaps in treatment.  

  • Hi Judith

    Yeah I think port may be the way to go.  Sounds a lot less hassle.

    Can I ask how was it fitted?

    Yvonne

  • Former Member
    Former Member in reply to Bubblebelle

    Hello Yvonne,

    Local anaesthetic and mild sedation.  There are some good YouTube clips explaining how it works and the fitting process.  But don’t watch those if you get queasy!  Also apparently much less risk of infection with port as opposed to PICC.

    hope your treatment all goes well whatever you decide.

    Judith

  • Hi Judith

    Fortunately I’m not queasy, lol. Will check out the clips though.

    Thanks for the info, think I’m pretty much decided on port.

    Take care

    Yvonne

  • Former Member
    Former Member

    Hi, I have a Picc line, was never offered a port and didn’t know anything about it until reading this thread! I have really struggled with the picc, I can always feel it and the dressings over it are pulling my skin and making it sore. Also a pain with showering etc as you can’t get it wet. 
    You have to have it cleaned each week as well so it’s just a pain really.

    hope that helps, Jen x