Hi all, had BC 2016 just been diagnosed with thyroid cancer. Being screened for PTEN mutation as my mum had BC then TC which she subsequently succumbed to at 56. I’m 57 and totally terrified and angry. Anyone else had similar???
Feel like it’s Groundhog Day having gone through all this with my mum 30 odd years ago and also having been through BC and now back in the same unit for TC.
Hi ProfSho and welcome to the online community, but so sorry you find yourself here.
I can completely relate to your groundhog day feeling. My Mum was diagnosed with breast cancer when she was 38, I was 16. She had a double mastectomy, and a hysterectomy and we carried on with our lives for 23 years, until the bomb went off again, I was diagnosed with endometrial stromal sarcoma at the age of 39. I had a hysterectomy and was told that no further treatment was necessary. Then a year later my mum was diagnosed with ovarian cancer. After lots of chemo and a trial at the Royal Marsden, my mum very sadly passed away. One year and one day later, I was diagnosed with incurable metastatic cancer, it is now in my lungs, and I found myself not only on the same ward that my mum had been treated on, but in the same bed! I was completely freaked out by this, and in the end they moved me to my own room.
I have been through the genetic testing programme, so I know how stressful that is on top of everything else you are coping with. It helps to talk to other people going through a similar situation to yourself. I was going to suggest you joined the thyroid group, but I can see you have beaten me to that. You can also call the Macmillan support line, they are there 7 days a week from 8am until 8pm on 0808 808 00 00.
Wishing you all the very best
