Diagnosed this week and super scared

FormerMember
FormerMember
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Hello I found out on Monday that I have TNBC and will start chemo within the next week or so, I was wondering if anyone has continued to work during their treatment? I keep telling myself to try to do as much normal stuff has possible but until I can speak to oncology I have no idea what to expect. I also have horses and do want to be able to care for them too but maybe I am being a bit optimistic, any advise would be great, thank you.

  • Hi everyone it’s really good to hear other people’s experiences - I’ve got my oncologist appointment on Monday and am going on my own. I’m trying to think of questions - any suggestions? Xxx

  • FormerMember
    FormerMember in reply to Essjay52

    Hi Sarah got everything crossed for you for Wednesday, it's the unknown that is scary but good to hear some positive experiences on this forum, although I might not be thinking that when I get my first treatment date take care and if you feel up to it maybe let me know how it went xx

  • Hi, I am curious about how you coped after surgery.   So far I've had 1 day each chemo cycle where I couldn't really function, but my surgeon has told me I need a full 6 weeks off for surgery recovery.  Am interested to know how you have managed, as 6 weeks doing nothing seems like a very long time to me.  Thanks 

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  • I completely get it. I haven't felt stuck in the house at all to be honest.  Some days I feel I can only walk a shorter distance or I am slower and a bit out of breath, but I manage to get out every day.   I found s walking loop that has a couple of benches and I admit I've taken a break and moved on again if I have needed to.   I agree with what others have said, listen to your body. I was beating myself up at first if I wasn't out and up and doing, but in the last few days I have learnt to try and let that go.  I think this is as much a psychological challenge as a physical one, at least it is for me.    Good luck

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  • Hi Fee,

    You’re right about the unknown but the thought is often worse than the reality, well that’s what I’m telling myself!

    Are you having chemo first? I’ve had 2EC then moved on to Docetaxel with Herceptins. Having my 4th chemo on Thursday. I’ve tried to keep a positive attitude by seeing treatment as steppingstones towards my recovery. I’m not going to say chemo is easy, it’s not, but it’s not been so bad. There are many very useful tips on the April chemo thread to help manage SE. I’ve probably not had as many and as severe SEs as some so been quite lucky.

    My BC surgeon said that exercise helps with SE and recovery from chemo. I’ve tried to walk most days. Went on a lovely peaceful, countryside walk yesterday. I’ve also joined a Zoom yoga class and just joined another exercise class run through the BC Oncology service. Sometimes I don’t feel up to doing things so may give it a rest for a day or so.

    I’m conscious of being immunocompromised, especially between days 7-14. I, obviously, don’t want to catch anything, more so because I don’t want anything to delay treatment. I’m sure you’ll be able to attend to your horses, most of the time, but I would ask if there are a extra precautions you should take. Maybe there aren’t, I don't know!

    I’m taking steps to address my mental well-being. I don’t like ‘unburdening’ my problems to my family and friends, especially my adult children, and tend to say I’m fine and make jokes. Maybe not the right way to be but that’s the way I am. I’m in the process of getting a Macmillan phone buddy, not spoken to them yet. I might do a lot of ‘off-loading’ when I do JoyBeen to some relaxation classes at the Maggies centre and enquiring into some other things. There is help out there and, with things opening up again more things should become available.

    Yes, I’ve had some days in the house, and it can be pretty long and, frankly, boring,  but I’ve tried to get out and about as much as possible too. 

    Please keep in touch and let me know how you are doing.

    Bluebell xx

    April chemo thread

    community.macmillan.org.uk/.../april-2021-breast-cancer-chemo

    Walking back to happiness thread

    community.macmillan.org.uk/.../walking-back-to-happiness

  • Hi. I had a lumpectomy and 2 lymph nodes removed. Not sure what op you are having but my surgeon was really positive and said I should be okay to continue working after just a few days.  My op was on Thursday and I took Friday off work but was back at it on Monday. But as I said I am working from home on a laptop so not physical but helps to keep my mind going.

    my lovely husband did all the house work for a good while and is still doing all the bigger jobs like hoovering, changing the bedding etc. He did most of the cooking initially although we are now back to sharing this.

    I went for a daily walk, sometimes it was a struggle but other days weren’t so bad.

    the biggest thing I can recommend is listen to your body and rest when you need to, don’t do too much! Housework can wait, who’s looking at it anyway!  Do your arm exercises, drink fluids and think positive.  I am 7 weeks since the operation and my underarm still has some days where it is swollen, some days not so bad, some days I am up and some days I am down and just wish it was all over. I am almost halfway through the radiotherapy now and it is okay but I can’t wait for it to end.

    I have not been out walking so much while having the radiotherapy but will get back to it soon. i am worried about causing friction to the skin. I am just taking every day as it comes and hopefully will have years to catch up on all the things I should have done or want to do!

    Best wishes!

  • I’m currently in hispital waiting room for 9am oncologist appt - I’m guessing things will now start moving quickly and I’m scared xx

  • FormerMember
    FormerMember in reply to Monalisa1869

    Good luck, thinking of you today Blush

  • Good morning. I had 2 appointments this morning, 9 & 9.30. Arrived at 8.45 and was out from both by 9!!!

    Nothing exciting... Just bloods and covid test xx

    We are all with you Kissing heart

    Sarah.... Keep looking forward Two heartsCherry blossom

  • Hi Monalisa,

    Good luck with your appointment today.

    Bluebell xx