The Waiting Between Appointments

Hi Honey1810 waiting for appointments and results really is extremely stressful because you just want to know all the facts and the full treatment plan so that you know what you are facing.

 I assume the MRI is to check for spread to the other breast?  I remember waiting for my results and being relieved that it was just in the one breast.  Out of all the bios I’ve read on here I don’t think I’ve come across one person where the MRI showed it had spread to the other side so statistically speaking chances are your MRI won’t show spread either.  

Hope you get your MRI appointment soon.

They told me the right breast was normal on mammogram but surgeon wants to check and she said she needs a breast mri to plan her op. It’s so stressful it really is I’m just trying to take it a day a a time and also trying to relax and go for long walks. I just have to accept it’s out of my hands and they will look after me. Yes I hope I get an appointment soon it’s the waiting game and I know ’m very lucky they found it and thank god I went for screening. X️

Hi honey. The waiting is the hardest part. I was able to keep busy with work (from home) and started lots of walking. It has taken 4 months from diagnosis to get a definitive plan for me,(which is not typical, so hopefully you will know much quicker) but I’m happy to say I start radiotherapy on Wednesday, skipping chemotherapy. if you click on my name you can see my journey so far. I’m actually feeling ok about the treatment now as I just want it done. Hope yiu don’t have too long to wait now. The BCN are fabulous as are the ask an expect on this site. If I can answer any questions just message me. Good luck. 

Hi,

Thanks so much for the reply I wish you the very best with all your treatment. I’ve got an mri on the 21st April then have to wait to see surgeon again for results. I’m so stressed but walks and herl teas are helping a bit. It’s a nightmare!! But I’m so grateful that I’ve found you ladies on here you are all so kind. ️

It’s ok to feel completely thrown by this. I had no idea anything was wrong, like you they found it on a routine mammogram age 50.

The MRI is a bit of an ordeal, but it actually identified a second small area in my breast that otherwise would have been completed missed and then ruled out any further spread.

It really is stressful, but I promise you once you know your treatment options (and remember there will be a treatment path, which is highly effective) you will feel better. 

Do you have results from the biopsy yet? Are you ER positive? 

Hi Honey, I had MRI Friday to check if spread and to plan for op. Back Weds to hear about spread, prognosis and treatment. I have had a few weeks of back and forth and fears initial calmed only to find out I have invasive ductal grade 2 so I’m in shock.  Glad to see the comments here about MRI results. I’m slightly bothered about calcifications in L breast as their presence was given by radiologist no 1 to not be concerned about calcifications in R side. I was sailing along thinking I had mammary duct ectasia and now I realise I have a bit of a trust issue with the team. Good luck and nice to meet you. 

It’s so stressful for all of us it’s a nightmare!! I wish you the very best with your treatment please stay in touch. I still can’t believe this has happened I’m just hoping and praying it will be ok. Nice to meet you. Lisa X️

The waiting for scans and results is by far the worst part. As others have said, once you have a treatment plan you will feel much better. I had MRI before treatment to see how big the cancer was plus 2 MRIs during chemo to see whether it was shrinking (it was). I've had other MRIs and I found it less claustrophobic as you're lying face down. It doesn't take too long either. I had to have a dye injected during the MRI so they put a cannula in at the beginning and tell you when it's going to happen. You have an alarm button if you need it and they can see you and speak to you at all times to make sure you're OK

It is tough waiting and I ended up having a CT scan to check for any spread and a heart scan to make sure I was OK to have chemo. It feels endless but once they tell you your tailored plan, your mind settles and you just get in with it.

I tried to get through it by thinking that all these tests and scans give them the best possible picture of your individual cancer and that then allows them to give you the best possible treatment for you.

Stick in there, we've all been through the waiting and there is nothing anyone can say to make it easier but I found it a bit more tolerable knowing that others felt the same thing going through it 

Thank you it really helps to hear the experience of others. I wish you the very best with your treatment ️