Hi I'm new

FormerMember
FormerMember
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Hi I was diagnosed with breast and lymph gland cancer. Her2 negative grade 3. I am really struggling as I am mostly going through this on my own. I have had my first chemo and it has floored me. I went quite mad and confused. I spent several days ringing all the wrong numbers crying for help. I couldn't think straight or even watch a film. I ended up in hospital with sepsis. I was very delirious. Since I have had 1 infection after another. I was sent home from my second chemo. But I'm frightened. The next one is not far away and I'm overwhelmed. I have no family here and just 1 friend who is amazing but has a challenging life of her own. I'm struggling with my mental health too. My wife left me just before I was diagnosed. My house is on the Market. I barely leave the house for fear of covid. I'm not sure what I'm asking for here but maybe some support as right now I just want to run away. 

  • FormerMember
    FormerMember

    Hi, Sorry to hear you are going through this on your own.  Have you tried speaking to someone on the Macmillan support line to discuss your mental health problems.  Unfortunately, chemo does affect your immune system and, if it is vulnerable you will catch anything going round.  Also, have you been in contact with your oncologist or breast care nurse to discuss your fears regarding chemo  and its side effects. 

    Cancer is one rollercoaster ride nobody wants to be on but the ride, for most people, does come to an end and you can then try to rebuild your life from there. 

    Please try to speak to someone about your fears, it can really help.  Sending virtual hugs.

    Lesley

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you lesley. Was having a really low night. I am speaking with macmillan and my breast Care nurse is on holiday. I've gone through concerns with the oncologist and the drugs are being reduced. It was just very scary last time. Sometimes I don't feel strong enough but I do know I have to get through this. Just have my wobbles. 

    Thank you for your care and kindness. 

    Every but of kindness goes such a long way. 

    I hope you are OK 

    Tracy 

  • Hi Tracy,

    Sorry you’ve had such a hard time. I was given daily white cell boosting sc injections (tiny needle) after my first chemo. I obviously don’t know if this would be appropriate for you but it might help.

    I have family and friends to help but I’ve signed up for the McMillan Buddy phone calls too. I’ve been to the Maggies centre, for a relaxation class, and have a Zoom link for their yoga class. I think we all need all the help we can get!

    Hope you can get the support you need.

    Bluebell xx

  • FormerMember
    FormerMember in reply to Bluebell Woods

    Hi bluebell

    I have the injections. Blue ones. Thought they were for dvt. But later found out they were to boost bone marrow to boost healing. I didn't think I had too much trouble with a needle until those.. I had blurry vision so couldn't read the instructions. I did loose the plot and just couldn't do them. I did ask twice for the district nurse but they didn't show up. I'm told that's why I got sepsis.

    I do feel like I'm challenged on every level. Even some I didn't know were there lol. 

    I think you're right we all need as much help as we can get. I am looking forward to the lockdown ending being trapped in your home doesn't help at all. 

    1. Thank you though. It is good to know you're not alone 
  • Hi TracyFacey,

    Sorry to hear that the DN didn’t show up. That’s not good. Have you a BC Nurse that you can phone? Hopefully she can help especially if you have to take these injections again.

    Hoping for the best for you.

    Bluebell xx

  • I had low grade Her2 so no radiotherapy. I thought i was OK but it hit me suddenly and I joined this group. It has helped tremendously and I know I am not alone, Please don't be overwhelmed as there is plenty of help if you need it. Use whatever resources you can find to help you through this, Macmillan support is always there! You can do this! Be strong! x