Been on Abemaciclib and letrozole for a year and now experiencing red hands and feet burning tingling pain oncology think it could be peripheral neuropathy still waiting to see my team leader anyone else had this happen?
I developed peripheral neuropathy but from the taxotere not the drugs you are taking. You have done the right thing discussing it with oncology but now you need to see a neurologist. The neurologist can check if the neuropathy is permanent. There are also prescriptions you can take to help control it. The earlier this is diagnosed, the less permanent damage will occur.
Unfortunately my neuropathy was permanent but it is controlled by regular medication and monitoring. I see the neurologist every six months.
It is important that your departments do not just tell you that the neuropathy will go after a couple months and do nothing to help you without assessing you first. It is possible it will go on it's own but you need to know if there is permanent damage because that won't go and the sooner you begin taking meds like gabapentine, B12, B1 and B6, the smaller the amount of damage .
I hope your team sorts you soon. Permanent damage isn't pleasant but controlled, I can cope with the continuing problems.
