I really don't know where to start. I was first diagnosed birthday breast cancer in 2012 and again in 2013, during chemo, with another different type od breast cancer, lobular. In the past year or so i have been struggling with hip/lower back pain. So much so i cant sleep laying down any more. Finally pushed to get an MRI down...just awaiting results but since then, more worryingly, I have developed a numb chin. Its been 3 weeks now and although bloods and head MRI came back fine, except borderline B12 deficiency, I am really worried that the head MRI is not a good enough scan for the nerves in the jaw as the area that is affected is the same as numb chin syndrome which is a red flag for mets...especially breast cancer mets. I understand that if this is in the early stages in the jaw area, an MRI may not pick it up. I also have the faulty RAD51D gene. Should I push for more tests...my doc first said she couldn't authorise a CT scan..and I don't have don't know if I even have an oncologist as I have moved since initial treatment. Anyone else experience a numb chin on one side?
So, as numb chin syndrome can also be caused by possible dental issues i also went to see my dentist. They took an x-ray and, although they didn't see anything that could be causing it, they referred me to the oral surgery department at the hospital. When I went, they said "let's do an xray" as the dentist hadn't shared it. He also didn't see anything obvious so said to have an MRI. When I told him I had already had one he promptly said, but that didn't cover your jaw!!!! So now I need to go for ANOTHER MRI...and possibly more tests if not conclusive. I hate the waiting.
Hi, I'm 38 and also have RAD5!D. I'm thinking to get prophylactic mastectomy and salpingo-oophorekto! my. I wish you all the best! As the mutation is so rare I'm glad to connect with others who have the same. May I ask what kind of cancer runs in your family? Anything else besides breast and ovary cancer? How are you feeling now?
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