Numb chin worry

Hi Strawberryfool78

I'm Daisy53 one of the Community Champions on this forum.  While I don't have any advice for you I noticed that you haven't had any replies yet.  Hopefully someone will be along shortly with an answer for you.

Best wishes

Daisy53

So, as numb chin syndrome can also be caused by possible dental issues i also went to see my dentist. They took an x-ray and, although they didn't see anything that could be causing it, they referred me to the oral surgery department at the hospital. When I went, they said "let's do an xray" as the dentist hadn't shared it. He also didn't see anything obvious so said to have an MRI. When I told him I had already had one he promptly said, but that didn't cover your jaw!!!! So now I need to go for ANOTHER MRI...and possibly more tests if not conclusive. I hate the waiting. 

Hi, I'm 38 and also have RAD5!D. I'm thinking to get prophylactic mastectomy and salpingo-oophorekto! my. I wish you all the best! As the mutation is so rare I'm glad to connect with others who have the same. May I ask what kind of cancer runs in your family? Anything else besides breast and ovary cancer? How are you feeling now? 

Hi, I’m just wondering how you are now? Hopefully the second mri was clear for you. I’ve have been experiencing very similar symptoms. I’m awaiting a dental appointment as my mri was also clear but the numbing hasn’t got any better and want to make I haven’t got any hidden dental issues 
 Xxx

Hi there, I did have the second MRI and it did come back clear HOWEVER, the numbness persisted and I pushed and pushed to be referred to Oncology and he asked for the scans to be reviewed by his neuro radiologist. Unfortunately, both MRIs did show bone mets to the mandible, with a progression being visible in just the 5weeks between them. I have since had a PET-CT and have it also confirmed in my femur, humerus, c7 vertebrae and my supraclavicular node. I have completed radiotherapy to the jaw and am on my second cycle of Ribociclib along with continuous letrozole. Needless to say I have put in a complaint to PALS, as suggest by the oncologist. Keep advocating for yourself and push for a referral, if you haven't had one already. GPs just aren't aware of thie red flag symptom. 

Apologies, only just seen this as I've been caught up in treatments. Doing ok now....although I do have a stage 4 diagnosis with mets in multiple places. My previous breast cancer was Lobular, which is know as the "sneaky" one so no surprise its been lurking around. I now at least have a treatment plan so focusing on that. This its just the ovarian and breast in the family. I also understand that, due to the RAD51D mutation, I may be able to jump on some trials later down the line, if these treatments don't work. 

Oh I’m so sorry that you have a new diagnosis and it’s taken so long for you to get answers  Thank you for replying. It is a fear I have and they are putting it down to neuropathy from my chemo last May as I have one sided weakness but now it’s progressing in my chin along jawline. I haven’t been referred as the mri were looking for stroke in A&E  and that was clear. I will push for another scan and to see oncology again as it’s been 4 weeks and still there

My chin numbness was in a specific area, the area categorised when you research "numb chin syndrome"...rather than a general numbness. Hopefully you will get some answers soon.