I was diagnosed on May 9th and start EC chemo tomorrow, I'm going to try the cold cap but in preparation I had a lot cut off my hair today.As I wrote in my resilience diary tonight ,I looked at the quote on tomorrow's page and it seems very poignant so I thought I'd share it.
Take care everyone
Sarah
Just popped in to say, that quote is so apt! I have a short list of inspirational quotes I have come across, in the back of my diary, and I have added this one to it.
Without having been armed with that quote at the time, I found it a very true concept when I recently had a partial nephrectomy. It was almost two years to the day after my total hysterectomy. I struggled with the approach of the first, as that was the first time in all my 62 years I had ever been in hospital, ever had surgery, ever had a GA!
When the partial nephrectomy loomed, I told myself that I'd been through one surgery and had come safely out the other side, and healed very well and pretty quickly, so I knew (had learned) that I could do this, that all would be well, and that I could cope with this.
Having a glass-half-full attitude is a real blessing. And your quote reflects that.
Wishing you all the best with your chemo. Yes, you can do this! And I hope the cold cap works well, but I like your attitude of contingency 'just in case'!
Hi Sarah, thank you for sharing.
I just wanted to send you all of the positivity and hugs for your start of EC tomorrow.
I had 4 rounds of EC last year. It's not a thing any of us would choose but we can do it.
Best of luck with the cold capping, your treatment and beyond. Hugs, Shaka
Chemo day went OK apart from it took 2 hours longer than expected, clinic ran late as no cyclophosphamide onsite so had to come from Bath. All the nurses were amazing and apologetic,not that it was there fault. Cold cap was alright, quite refreshing really, ruin my new hair do though.
Feeling OK currently, tummy feeling slightly off but generally I'm OK.
Take care all
Sarah
Great to hear you’re first session was ok - I have my first EC session on Friday & trying cold cap too - trying to keep nerves - and tears - at bay xx good luck with rest of your treatment! Xx
Hi,
It'll be 2 weeks tomorrow since my first EC chemo, I have been so lucky so far. Minimal nausea, did feel slightly off for a short time but have recovered really well. Steroids did mess up my sleep so I made sure I went to bed earlier and took the day off after chemo just in case, plus hubby said he was going to hide car keys!
I'm enjoying the vivid dreams and my sleep is actually better than before chemo, I'm getting more REM and deep sleep.
I know it might not be so lucky next cycle so I'm making the most of things. People keep saying they love my hair and how well I look , feeling very grateful for life and the love and support I'm getting. I took part in the Salisbury hospital charity ,Stars Appeal, Walk for Wards yesterday. Initially planned on doing 5km but chose to do 3km as I was feeling tired.
Just wanted to share because I know I'm one of the lucky ones and wanted to show there is hope.
Take care
Sarah
This makes me so happy. It's really nice to hear some reassuring stories. I had a lumpectomy and sentinel node removal almost 2 weeks ago and my results are next week. If I don't need further surgery my chemo is starting in August.
I think chemo is the one treatment that we all dread so thanks for sharing your positive experience..
Your hair is lovely so I hope you get to.keep.it. If not you have a lovely face so you can experiment with different wigs and I am sure lots will suit you.
Let us all knownhow the next cycle goes.
Hi Sarah. Glad to hear this. I had my first EC 2 weeks ago too, second one is next Monday. I am having 3 in total. I have felt quite tired, a little “off” and spaced out. Constipation, headaches, sore mouth and sore nose. I have had 9 sessions of a different drug so these are added on.
I hope you continue to feel well x
Your experience makes me more hopeful. I start EC for 3 cycles next Thursday 17th. Feeling quite frightened. Getting my hair cut later today to a shorter style but feeling unsure about that decision now. It's all quite overwhelming.
Glad you managed the chemo well and didn't feel too bad. Maybe I'll be the same.
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