Treatment for breast mastatses in liver

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Hi all. I had huge support a few months ago when I was first diagnosedi have the breast cancer gene

I've had breast cancer twice. First double mastectomy no further treatment. ( Blood test said my chance of recurrence was very low indeed)

5 years later. Breast cancer again.Reconstruction removed, lymph nodes affected . Completely different cancer chemo and radio

Now this mestatses in my liver. Treatable but incurable

I had the dreadful wait between accidental finding a suspicious something in my liver by way of a lung CT scan, to confirmation of a cancer. Then a further wait for a biopsy which was extremely unpleasant and was a surprisingly lengthy process.

The worst was the wait between full body CT to review and being told fortunately from what they can tell it's nowhere else.

To all of you going through THE WAITING!

YOU WILL GET THROUGH IT.

My adjunctive jab treatment was started immediately the cancer was confirmed. I then had to wait 6 weeks to get the results needed to get the targeted treatment.

It's called Tisqali or ribciclib. I was terrified when they showed me the side effects

Fortunately for me my side effects have been minimal, watery eyes and sleepiness.

The jabs adjunctive meds are pretty intense but if I'm very lucky the prognosis could be a few more years.

I'm telling you all this because if anyone else is taking this drug or has been advised to. Don't be as frightened as I was. A huge list of side effects IS terrifying. But most people only get a few of them

My cancer advice

Rest when you need. Plans tiny targets every day, congratulate yourself if you do it. If you can't don't best yourself up.

Smile, do what you want and what you can, when you can.

Surround yourself with those who feed you positivity and love.

If anyone wants to talk about this new drug or just breast cancer please ask. I'll share my experiences

Hugs

Irishgirl16 2 months ago

Hi Julie a I'm one of the champions here in then group and I just wanted to thank you for such a supportive and positive post. I'm glad to hear you are managing well. The advice you've shared with help others I am sure. Have a good Sunday, best wishes

Cloudier 2 months ago in reply to Irishgirl16

Thank you Julie a for taking the time to write your positive post. Your parting advice is quite right. I hope you enjoy the forthcoming Spring, with its joys of nature and renewal. Xx

Leelaloo 2 months ago

Hi Julie, sorry to hear about your diagnosis such a horrible disease. I had breast cancer in 2012 with all the treatments. Now last year it has returned with mets in skull, ribs, spine, pelvis. I am also on Ribociclib, Exemastane and Denosumab jabs every four weeks. Are you on the full dose of Ribociclib as I have developed such a terrible rash and might have to have the dose reduced. Like you that and watery eyes and tiredness. You are very positive which I think is half the battle.

Lee x

Julie a 2 months ago in reply to Leelaloo

Sorry to hear that Lee..I'm on the full dose it affects people differently I guess. My consultant refused to believe the eatery eyes are connected to the drug despite it being noted as a side effect which is annoying.

Definitely positivity helps. I try to share it around with everyone like saying have a great day to just strangers or shop workers it fills me with joy.

I hope you find some relief. I heard a friend of mine was seeing a dermatologist for help with her rash?

Might be worth a try.

Have as good a week as possible fingers xd for more of that sunshine..x

Julie a 2 months ago in reply to Irishgirl16

Well thanks. It's great to share positivity as we all need it. You have a great week x

Julie a 2 months ago in reply to Julie a

You too. Enjoy the sunshine

Coddfish 2 months ago

I have a different breast cancer (TNBC) metastasised to my liver, so my treatment has been different. I have been living with this since 2022 and enjoying remission for the past year. I completely agree with the philosophy of doing what you can and surrounding yourself with people and things you enjoy. No-one can be certain of their futures, us “incurables” even less so, but modern treatments mean many of us live good lives.

Sanguine 2 months ago

Hi Julie a

So sorry to hear about your prognosis. I can’t imagine how difficult it must be.
I was messaging as I’m also on Ribociclib (Kisqali) & have been since early Sept. I was initially on 600mg (3 tablets) for 21 out of 28 days but it was affecting my liver & I had bad nausea so am now on a reduce dose of 2 tablets. Side effects have been ok now, no nausea, but I have been having watering eyes since mid Jan & no amount of different eye drops seem to be helping. I thought possibly it was because of Ribociclib but not sure if oncologist agrees. I do also have a deep red rash mainly on both my shins which doesn’t want to go.

Take care x

Sanguine 2 months ago in reply to Leelaloo

Hi Lee

I have very annoying watering eyes too & a deep red rash mainly on shins.

Julie a 2 months ago in reply to Sanguine

It seems to coincidental for us all to have watery eyes..No idea what to do about it though. Hope you have a great day

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Treatment for breast mastatses in liver