The waiting game for all results!!

Totally agree. Each day is different. I can be strong and positive one day and the following bang very low and absolutely petrified!! 

Been send so much literature I can't bear to read it.

I think today is going go be a shit day even though I slept right through first time in ages with the help of  a little pil.

When my son was in intense care unit about 12 years ago, he had a lovely Australian male nurse. His words have always stuck with us 

" get through the morning, then the afternoon,  then the evening and then do it all again tomorrow "

So that's what I think I will be do today. Sorry for the long message. Lots of love to all️

Hi All. 

Just to let u know I had my CT scan today. Been anxious all weekend and to make things husband has come down with a chest infection..And the last 2 days been he's been the patient more than me.

My son had to to take me to my scan as he had a GP appointment about the same time. 

Got to keep clear from him and I'm now more exhausted than normal with up and down the stairs!  

The real countdown has now started 14 days to see the consultant for the results 

Hope he feels better soon! Good luck for your follow up appointment. I know where you are coming from with the anxiety I’ve got my ultrasound on Wednesday where they will put the locator tag in and maybe do more biopsies on the areas highlighted in the mri scan.

ive been on edge all day. I’m getting discomfort in my armpit and not sure if it’s something to worry about or if my brains just messing with me.

I hope so too!! He's taking the limelight from me lol !! No on a serous note I think the stress of it all has caused his chest infection, he's had a bad before but not this bad! This morning we thought it was covid and I had to go out and get some tests!

Good luck for Wednesday. Yes the brain likes messing with us every little pai or oddity n I think is linked. Like last night my neck flared up with rash and the skin was so dry!! 

Hi Jackie & MamaH

Sounds like we're all around similar stages of our 'journeys' (much used word,  sadly I used to associate it with nicer things). I have CT scan this Thursday, and had an ultrasound and a locator tag inserted at my last appointment following MRI scan. 

I was just thinking when I wrote that last line - we now use all these technical terms which meant nothing, or very little, to us a few months back to describe where we are. It's no surprise that our brains feel scrambled and our bodies react to it all. I know people mean well when they say be kind to yourself and take each day as it comes, but really there's no choice ! Better to go with what your son's Australian nurse said, Jackie.

Thank you for being here, and wishing you both all the best outcomes in the next stages your treatments and recoveries.  

Xxx

Unfortunately for me the language is all to familiar although it’s the first time I’m using a lot of it in relation to myself rather than other family members.

My work colleagues are all being great but they think I should take time off work to be gentle to myself it’s hard to explain to them that a) I can’t afford to take time off before I need to. b) I would drive myself and the family batty if I was home. 

I only started this job in October and my 6 month probation is not up until the 16th April. I know I. Can’t fail the probation due to my cancer diagnosis as it’s classed as a disability and is therefore a protected characteristic but I don’t want to feel as if I’m taking the piss having time off before I have surgery or other treatment. I know I get 1 month full pay and 2 months 1/2 pay before statutory sick would kick in but I don’t want to take too much time off if I can help it because it would put a huge strain on our finances. So that’s another major worry going through my head right now. I’m sure I’m not the only one in that particular situation though.

keep talking it’s great to have people keeping me company through this uncertain time.

Ladies.  The worry about finances is very real but if you ring Macmillan they can check to see if you see are entitled to any benefits.  Universal credit can be claimed even when working, if you rent or own your own home.  .There is also ESA both contribution based and income based.  Then there's PIP.  This is based on how your illness affects you not on diagnosis .  You can claim PIP and work full time.  Finally there's carers allowance.  If you get PIP your carer can claim carers but there is an earnings limit.  Important to look into as many protect your NI contribution.  There are calculators online but a MacMillan advisor might make it easier for you.  

So the second round of ultrasound has been done no extra biopsies thank goodness but they did place the tag which was as uncomfortable as the biopsy! I’m a bit sore but I know that will wear off. Just waiting for an appointment with the surgeon to find out what happens next and when!

I'm at the same place as you - more waiting, and I'm not handling it very well. Hope things are better with you, and you get your appointment and that much-needed information soon.  Thinking of you, please keep posting, wishing you all the best xx

I'm the same as both yourself and MamaHill I think I'm alright with the waiting and the more I tell people the more I feel alone if that makes sense.  I'm trying to be strong but underneath I'm a nervous wreck !! 

I've even set a countdown on my phone to my next appointment to get my final results. Just over 168 hours to go.