DCIs high grade and eastrogen negative

  • 17 replies
  • 253 subscribers
  • 1706 views

Hi all , I’m booked in for a single mastectomy this month but found out yesterday that I’m eastrogen negative.. is anyone else been in a similar position?is this a bad thing ? Also can anyone please tell me possible further treatment after the masectomy… ie : good or bad news on the test result post op .. many thanks x

  • I buried my head in the sand initially but my then 20 year old daughter told me to ask size, grade etc as I was terrified when I didn't exactly know why.  You can ring your BC nurse for a chat if it helps.  Mine was great, like this site, no silly questions or judgements.  As northerner says once you have treatment plan and get going anxiety reduces.  

  • I did phone and ask for the pathology report but she didn’t want to send it to me as she didn’t want me googling it and not understanding!! She said she would give me it at my post op appointment! But like shutting the gate after the horse has bolted x

  • She should have talked you through the highlights.  After I had my diagnosis the BC nurse came to my house a few days later and I had a small list of questions.  It turns out there had been a MDT meeting since d been told and I'd been sent away to think about bilateral reduction only for her to say it was no longer thought necessary.  So all my should I'm shouldn't thoughts occupying my mind were unnecessary!  She just told me it was intermediate grade dcis, size and hormone status would be reviewed after surgery biopsy.  I know there's a lot of other bits on pathology but at that point that's all I needed to know.  

  • All she told me was that I was eastrogen negative! Which of course I googled and then felt even more worried and low 

  • As it's DCIS it's early stages so don't focus on hormone receptors.  I'm negative and 8 years down the line.  Many ladies struggle on hormone treatment as it can cause various side effects including hot flushes, joint pain, brain fog etc.  what's important is they've identified your cancer and they know how to treat it. 

  • Thank you carol for taking the time to reassure me , I cannot thank you all enough x