Hi I have recently joined this female dominated cancer world I have had mastectomy followed by lymph node clearance joined optima trial so skipped chemo and went onto radiotherapy for 5 days and tamoxifen daily. Pain scale: Biopsy 8-10 Mastectomy 3-10 Lymph node clearance 3-10 Radiotherapy 1-10 This is a really hard cancer if you happen to be a gentleman sat in waiting rooms listening to woman talking about there treatments but it is the only way a male can find out the pitfalls of treatments and i would like to thank and apologize for listening in because without this there is nothing out there for males! We are told dont go on internet at clinics but how on earth can you find something or someone to talk to,i personally felt like i had been pushed of a cliff as i could not find a solution having contacted a charity and the internet is all about female led questions. I mentioned this to a consultant and his nurse came up trumps with a male support network at Breast Cancer Now , so any males looking for advise ,support look at this charity because there is nothing out there for males and when you find a post it is usually years old . Thank you
Hi. Thanks for posting this. I would be very interested in this group after getting through my surgery- not a common cancer for us men.
It would be nice if we had a section on here for just male breast cancer rather than the threads just disappearing. BCN are doing so in the next few months
Someone did suggest asking the administrator to do that but as I’m fairly new on here I don’t know how to go about that request.
Someone did suggest asking the administrator to do that but as I’m fairly new on here I don’t know how to go about that request.
That was me. If you look in your profile you will see that the moderators are on your list of friends. Click "connect" and it should open a new message.
I can message the moderators, but I think this is best coming from you guys. I'd reiterate what Doug E said about men needing a section rather than just a single thread.
By the way, Doug, this thread is now pinned to the top so will not disappear, but I agree with you. As for the link you provided, yeah. All the quotes in there are straight out of this thread here.
Thanks Greycats . I think I have messaged the moderator!
I received an email from the community team earlier and have floated the idea with them also
Hi, I have asked the Macmillan team if they would set up a specific group and they said they were looking into it. They will also be keeping an eye on this thread to gauge interest in that as an idea. Hope this helps
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