Got call from Drs secretary .. feel even worse

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Hi me again 

Im Sorry , I know I’m probably driving you all bonkers 

So yesterday evening BCN nurse called me back after I left her a message and said she’d promise to chase up my CT results and get me up to clinic for them as soon as she could

The consultants secretary has just called to give me an appointment for 1pm tomorrow, why so fast ?? 
Im panicking even more now , I cannot stop shaking and crying and worrying about my kids 

 I have a very large mass and numerous cancerous lymph nodes already so chances of it spreading are high 

Im absolutely terrified 

Has anyone else been in this situation ? 
Sorry again 

Love L xx

  • Hi Dolly I’m sorry you’re going through this agony. There have been lots of people who post on here with cancerous lymph nodes and still have very successful outcomes through axillary clearance.  I read somewhere the nodes act as a kind of safety net.  I’m sorry you’ve been diagnosed it’s truly awful waiting for results.  I’ll be thinking of you tomorrow xx

  • Hi Dollydimple, waiting for results is the worst thing Worried Easier said than done but try not to get even more anxious following the call from the secretary. Your nurse has listened to you and taken steps to get you your result as soon as possible, which is a positive thing. I've received  calls from the secretary on several occasions inviting me to a meeting with the consultant the next day and it wasn't unusual for this to happen when I had been chasing up results. The fact that it's a 1pm appointment might mean that it's being conducted during the lunch time break when the consultant has some spare availability, or perhaps they have had a cancellation. I had a fairly large tumour too, grade 3 and with spread to my lymph nodes but the CT scan showed that the cancer hadn't spread elsewhere and hopefully your result wlll be the same.  I'm sure that everyone here will have felt terrified too at some point whilst waiting for their results but the sooner you and your medical team know the outcome the sooner they can start with treatment. Hope it all goes well for you tomorrow x

  • Hi, yes I was seen on a non clinic day after an MDT meeting then 3 days later I was having my surgery.  I was petrified but because  lymph node biopsy had come back positive and MRI showed cancer to be possibly larger than they originally thought, they wanted to start treatment asap x

  • Thanks so much 

    How you doing ? 
    L xx

  • Thank you so much 

    My husband said I’d be freaking out if I had to wait any longer ( he’s right ) so I guess it’s better tomorrow than waiting any more , I think 

    Hope you’re doing ok ? 
    L xx

  • Thanks Mel 

    Yeah that must have been scary , 3 days wow , not much time to prepare  eh but glad it was done quickly 

    L xx

  • I’m doing ok I think thanks, just about halfway through chemo now then got to have radiotherapy. Probably more surgery as I found out I have a genetic mutation called PALB2 along with triple negative bc, so there’s been a few ups and downs along the way. Have a big glass of something tonight it’ll help you sleep.  Lots of luck for tomorrow xx

  • Hi, I do feel for you with all your shock and anxiety. But appointments do come up unexpectedly, it’s just how the medical world works. It must be awful having to deal with kids - mine are grown up so I didn’t have that. I did experience the shaking, anger and shock though. It seemed so unfair - I’ve just got over a hip replacement, then the pandemic, now this….But no use thinking that way. It’s happened now, just got to get on with it. Your feelings are real, they’re valid, and I really hope you find someone to talk to about them, either here or elsewhere. Don’t apologise. It’s only human to be scared, I’m sure very few people who have been on this journey haven’t had similar feelings at times.

    Ruth

  • Glad you’re half way through the chemo , sorry you might have to have more surgery though , rollercoaster of a ride this isn’t it 

    Thank you I think I will ! 
    love L xx

  • Thank you 

    I know we just have to learn to deal with things one at a time , I just haven’t got to that bit yet , feel Hysterical !

    Thanks again 

    Hope you’re  doing ok 

    L xx