Triple negative

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Hiya,  I'm new to this.

I've had 3 cycles of E.C following 9 weeks of carbo & taxol. I then had a lumpectomy and 2 weeks of radiotherapy.  I should be feeling happy, relieved its over but I'm not.. I'm tired and frustrated with my recovery and so anxious about it coming back and catching covid.  It's weird but I feel like I've been forgotten about,  'there you go, we've treated you now get on with your life' I think I might be having a rant. 

Xxx

  • Hi Kate, most of us felt like this when we finished treatment, like you are hung out to dry, it does get better but is a struggle, "Breast cancer care" and "Cancer Support UK"  both do moving forward courses, I did both and through it met a bunch of women that will be friends for life, I am no longer in that "hole"  but can remember only too clearly what it feels like.  You are not alone.  Love from Ann

  • Hi Kate

    Im the same. Same diagnosis and treatment just waiting on RT to start and chemo tablets. It may be gone but still playing on my mind. Disappointed
    xxx

  • FormerMember
    FormerMember in reply to Kas79

    Hi All, I'm in a similar situation. I'm on the final stage of chemo in tablet form. I've had chemo, then surgery, then RT.

    I'm now experiencing terrible pain in my shoulders and I'm scared that the cancer has returned but my Oncology nurse keeps saying it's unlikely to return as I'm still on preventative chemo to stop it returning. I just don't know why I've got these shoulder pains. 

    Has anyone else experienced that?

    Barbara 

  • Hi, just diagnosed triple3 negative. My lump is big 4.5cm so ct first then 6 chemo to shrink it. So worried it might have spread as its large.

  • Hiya. There’s larger lumps than that out there. Mine was 30mm with a 8mm baby. I called mine Larry and Larry junior to try and she’s some light on a crap diagnosis. 
    Are you just having chemo or have they advised of any other treatment? 
    You’re in good hands with your bc team. I can’t praise mine enough. 
    There’s loads of us on here if you need to chat or ask anything. If you want to pm then by all means do.

    xx

  • Hi Kas 79. Yes got CT scan then 6 sessions of chemo to shrink it. Surgery after that then radiotherapy. Sounds horrendous your lumps. 5cm just seems large. Glad to know I'm  not alone. Yes would like to keep in touch on our journeys and thank you for your good advice.

  • You’re welcome. It’s good to talk to others who are going through the same. I thought it was all scary to start with. I found chemo tiring but manageable. Just take all the meds they give you and take water with you and things to do like a book or magazine. Sometimes I fell asleep whilst I was having chemo lol. Which drugs are they giving you? I had 3 x EC and then 4 carbo platin with 12 weeks of paclitaxle.

    The lumpectomy and lymph removal was a piece of cake. And Radiotherapy is the easiest.

    Take it easy and allow yourself time to recover. All these treatments bring on fatigue so rest is best. 

    big hugs xx

  • Hi, don't  know drugs yet ct scan then oncologist first so probably told then. Thanks for telling me chemo is tiring. I'll  make sure I rest. You take care and look after self. Xx

  • FormerMember
    FormerMember in reply to BobbysGirl

    Hi BobbysGirl,

    I have also been diagnosed with TNBC (back in October). I had 12 weeks of taxol and carboplatin and now, I´m currently in the middle of my 2nd lot of chemo (A/C) - due to finish hopefully next Friday Fingers crossed

    It sounds like you´re at the stage of having all the pre chemo scans etc. I hope they go as well as possible. I remember finding the first few weeks quite overwhelming so as Kas has said, if you have any questions/worries about anything, ask away.  XX

  • FormerMember
    FormerMember in reply to Kas79

    Hi Kas, I just had my first appointment with the surgical team to discuss my operation and I´m due to have a lumpectomy and lymph removal too at the end of March. I´m feeling pretty nervous about it so I´m relieved to read you describe it as a "piece of cake"!  Any tips or words of advice? Thank you! x