Feet are burning

Morning.......The symptoms you describe probably do suggest some neuropathy. I found that pressure on my feet made them feel worse and didn't help the restlessness. Even the under sheet hurt which contributed to the movement. So, I found two things helped in bed. Firstly I put my feet on something really soft. I had an immitation lambs wool fleece. It was large enough to allow me to keep my feet apart but very soft against the burning. You'd think it would make them burn more but it didn't.  The softness seemed to cool them.

Secondly, I had a cage which lifted the top sheets and that meant no pressure. I still sometimes need to use it as although not as severe, I can often feel the soreness and burning starting to develop and I do try to prevent that now I can recognise what is happening.

I'm afraid you must chat to your team. There are some tablets and B vitamins you can take that help but I'm afraid the damage can be irreparable and you don't want those complications.

Take care. I hope you can find some help soon.

Love Karen

Thanks Karen I will ask tomorrow about pain relief and vitamin B … fingers crossed 

Hello Hmfm I’ve just had my 6th kadcyla and my feet feel like they’re on fire! I’ve been putting Vics vapour rub on them last thing at night. It definitely takes the edge off the burning feeling. I’m taking lorazepam to sleep but they’ll not let me take that permanently. Is your amitryptilline working? 
Im going to call my oncologist tomorrow and ask for a dose reduction as the pain is really hard.

Have found Kadcyla harder than I expected. Wish you well x 

Hi

i actually forgot about the Vicks  , need to get some. The burning is awful isn’t it. I find the amitryptilline helps and I’ve started taking vitamin B12 orally. Will ask if ok when get my phone call before 7th infusion . I want to keep going with it. I had my kadcyla reduced 10% couple months ago . Not much difference 

Forgot to say. I bought one of those cool pads that people bought during hot weather for their bed. Got mine on Amazon and use it every night when I go to bed. Really helps the burning sensation 

Oh that’s good to know as I’ve just ordered those extremely unattractive socks with the ice packs in them!! X

Hi Hmfm

It's chemotherapy induced peripheral neuropathy. I found massage helped massively. My husband massages my feet for about 5 minutes on each one and although not completely gone, there has been a massive improvement to how they were immediately after my chemo treatment. The relief was immediate as well with me and would last a few hours before the pins and needles and numbness would come back. Try it, when the hubby's not around I just use moisturiser and do it myself, it definitely helps me. Take care x