Now what?????

Hi

Our story’s very similar I was diagnosed in Nov 19 as well, lumpectomy,chemo,radiotherapy just like you, have 2 more Herceptin treatments then the 6 monthly bone treatment and yearly mammogram. All of which I did on my own too.

like you I feel what happens now and felt nobody wanted to discuss anymore almost as if it was over I survived let’s move on which is what I want but my head does not agree I have a lot of emotion I need to express etc. Feeling like I did I did some searching for something to help me and I found a charity call Cancer Couch UK, they do a support group for those who have finished treatment, it is a 6 week course which is free and I am on week three and I have found it really helpful meeting with others who feel like me and do not know what’s next.  My group is great only 6 of us including the facilitator but we talk about all things, what we have been through, our emotions etc I have found it so helpful and look forward to it each week. 

If you need the info or just want to talk let me know happy to buddy up if it helps I have found talking to others has been so helpful.

take care

Alyson

x

Dear Kimbo56

if your a drama Queen then we all are . What you are feeling is very natural . I think most of us will worry about recurrence . We are all different how we handle it . I have one very good friend who was more an acquaintance before my diagnosis but has been wonderful on my journey . 
please phone the helpline who will chat with you and guide you forward - I believe they can match you to someone like you and who you can chat to . Breast cancer care also do a moving forward course , which is online just now but hopefully not too long till they can have face to face meetings in small groups . 

I hate when people say

“you have the all clear so your fine !” 
to friends I say -“ the worry of recurrence never ever goes away “

To flippant people my reply varies - yes if YOU say so!

Really thanks for telling me .  

Ok I can be bitchy !

please don’t hesitate to call the helpline on here , they are so understanding and knowledgeable. Just ask for support and to be pointed in the right direction. 

love 

Ruby Rose  

I think that everybody here, no matter what their experience of treatment, all feel that little niggle of fear that it could come back with avengance.  I know I do and I didn’t go through half of what you have.  We all need to accept that those lucky enough never to have been in our position will never know what it’s like.  That’s the good thing about these forums in that everyone here does have some idea.  We’re not all “so brave” or think that if told to” keep fighting” it’ll all be okay. We all need to talk or let of steam about it at times and it’s great that we can here without fear of judgement.  If we are ever drama queens it’s because we bloody well deserve to be!  xxx

Hi Kimbo56, 

I think we all feel the same way. I’m still going through Chemo etc but I already have a fear that I’m going through all this and it’ll come back anyway. I think even when it’s over, we’ll all still be living with memory of Cancer. Macmillan helpline is definitely one to call. I think it’s very easy for people who haven’t been through it to just think it’s all over now but I also think a lot of it is that they’ve seen you go through so much and just want to encourage you to get on with your life because you deserve it. 
Take Care

Janine x

Thank you so much for replying, I’d love the info of joining a group. 
I feel better knowing others feel the same. I wish you well with the rest of your treatment and hope we get to chat again soon x

Thank you for the response and advise. I has helped me today x 

Thank you for your message and advise, it has helped me today to know others feel the same x

Thank you for replying. 
I hope your treatment goes well and remember to take care of yourself x

Hi

Please take a look at Breastcancernow https://breastcancernow.org/information-support/support-you/moving-forward-online-course

I did this course in person but they do it online now , a good chance to meet others in a similar position and help you manage your feelings. As everyone has said it will always be at the back of everyone’s mind who has had cancer , and no-one understands until they have been where you are , but you don’t want people you care about  to be where you are so they can never understand , a total conundrum ... I am nearly 5 years since diagnosis and the fact I still come on this forum shows I have never stopped thinking about cancer , but I try and manage it by, hopefully, helping others.

It is part of who I am now , and I have accepted that although it took me time to, I now have a new normal.

Take care

Jo x

Hi 

the coaching group I am currently in is run by Cancer Support Uk the webpage is 

https://cancersupportuk.org/cancercoach/

I have found it really helpful and I am enjoying the 6 week course.

Alyson