Lymphoedema

Hi there, I too have lymphoedema that affects my arm and hand. You definitely need to get a referral to a lymphoedema team as I learned to my cost that without appropriate treatment it can get very painful. By the time I was referred my arm was 97% larger than my good arm and I had lost the ability to do basic things like wash my hair or worse still eat with a knife and fork. The really good news is that within 3 months of starting treatment my arm has reduced in size to only 40% larger and I can now eat normally! 

Unfortunatelt Doctors get very little training on the lymphatic system so they do not always recognise how debiitating it can be Its worth asking your BCN to arrange an appointment for you.

Let me know how you get on. Im happy to chat if it helps.

Thanks for that. It's just painful at the moment and I hate painkillers! I will ring BCN on Monday and try to get some answers before it gets worse. No point in sleeping with arm in the air on pillows all night! 

I'll let you know how I get on.