Hello cha, TNC can be a difficult one to treat as I have recently found out myself. Sounds like your oncology team have got a great plan in place. I hope it all goes well for you, just make sure you take the chance to get some rest anytime the opportunity arises.
HI, I had triple negative breast cancer and had chemo first. I had a complete radiological response on an MRI before my lumpectomy (no lump seen) and a complete pathological response when the examined the breast tissue removed after my lumpectomy. Triple negative is not the best but it can respond really well to chemotherapy and after five years is less likely to recur than other types of breast cancer. I am now over a year free of breast cancer. I hope you have a good response to the chemo.
Hi Snap... i have recently been diagnosed with TNBC and to be honest ive had to stop reading about it as its not the best breast cancer to have or to treat but my Oncologist has also said it should respond to Chemo hopefully (my lymph node cancer is aggressive but breast one is the primary but smaller). So my plan is Double Cemo for 12 weeks (Paclitaxol weekly & Carboplatin 3 weekly). of which im on week 6. Then a second round of Chemo for a further 10 weeks (EC). Then surgery... Wide exision & removal of breast cancer & Lymph cancer with armpitt clearance etc. Then radiotherapy.... & what meds they decode i need.
This sounds similar to your plan.... when do you start? Have you had a Port insertion for Chemo?
Hi, I was diagnosed with TNBC in October and have just finished 5 months of chemotherapy, which is being followed by surgery. The chemo started with 12 weeks of paclitaxol weekly plus carboplatin 3 weekly, then I've had 3 cycles of FEC which was 3 weekly. Ultrasound has shown that the cancer has responded well to chemo, my affected lymph node is now clear and the tumour has shrunk. I have a lumpectomy and sentinal node clearance in April and am hoping that I will be clear after this. I hope you get similar results from chemo, my oncologist told me TNBC responds well to chemo which is why this is given before surgery.
Thank you for your message as this sounds very positive & similar to my situation & the Chemo & plan are the same. It is great to hear your good news about the Cancers shrinking to allow surgery to be less invasive.
I really hope it all goes well in April for you. Are you having any radiotherapy after surgery?
Thank you again for your positivity. The hair loss is challenging now and very emotional but i know with EC it will go quickly if not soonrr with Taxol but to be honest i have to just get on with it.
Hi - another triple negative over here! And 6 months pregnant to add to the mix. My ‘plan’ is 5 cycles of EC, have baby, then 3 rounds of another chemo and surgery and radiotherapy. Has anyone else had the BRAC gene test done? I am waiting for my results now, which will then dictate the type of surgery.
hair loss is such a pain and quite honestly just a massive inconvenience! It’s gets every where. I’m a week into my second cycle and my hair has thinned at lot but I can’t justify shaving it yet as it’s looks ok. I did have it cut short before though.
Really positive to hear that US are showing the tumours are responding. To be honest I haven’t really looked into what TNBC truly is......
Oh my goodness, that is So hard with you being pregnant as well! What a lot to cope with but really good to hear of the Chemo shrinking cancers in others (fingers crossed for us too).
I am having my bloods on Monday for the BRCA gene 1&2 & PALB2 but i think it takes 4 weeks to come back so it will be a little while before i know.
Yes i agree re the hair loss, ive had some cut off mine but i cant shave it! im sure it will all come out bery soon.
I started reading about TNBC but decided to stop as even though it isnt the easiest cancer to treat things have improved so much in the treatments & just go with what is recommended.
Hi @DCS1 thank you for your good wishes, I will find out if I need radiotherapy after my surgery. At the start of my treatment I was told radiotherapy is optional depending on how I have responded. The ultrasound shows a good response but I suppose the tests of the tissue and lymph once it is removed will be the best check.
what a challenge for you being pregnant and having to go through all this. I did have the BRCA test done and it has come back negative which is why I'm having a lumpectomy rather than a full mastectomy. Also, I have two daughters so I am relieved not to have the BRCA gene mutation.
The hair loss is a pain, I wore the cold cap during my chemo which has reduced my hair loss, I had minimal loss with paclitaxel but the FEC has been very hard on it and I've now lost a lot more. The cap has helped though and I've kept some. It is now just over two weeks since my last chemo and the hair loss has just started to slow down.
I've stopped reading too much about TNBC as it doesn't help me with my mindset. I trust that I am getting the best treatment and follow up and will take each day as it comes. I do have emotional meltdowns, mainly at night when all the worries come in but I do what I can to keep this in check. I have seen people posting who have recovered from TNBC and gone for 5 years and more without recurrence.
Sorry to butt in but your treatment sounds very similar to mine. But I had EC first and have just had my first carboplatin and paclitaxol yesterday. Surgery will be next (hopefully lumpectomy but definitely full lymph clearance). Then radiotherapy.
I had a picc line put in.
It's all very scarey (especially what you read on the Internet!)
