Supraclavicular node recurrence

Hi KJA welcome to the  forum.

Im not sure where your research has come from but to my knowledge having had surgery chemo and radiotherapy surely that means that you are Cancer free? 

What did they tell you at the hospital where you had your treatment and what was said at the end of it all to you by the team treating you?

Sorry to be such  a pain with more questions but if you wanted to chat to someone and see what they say why dont you give the Macmillan Line a call tomorrow and see if you can speak to one of the Nurses there. 08088080000. 

Thank you for your reply. They say no evidence of disease but can never guarantee cancer free. 
All they said was that they were treating me with curative intent and I grabbed hold of that thought and I didn’t ask any more information. I have researched online but I am careful to look for scientific studies. 
I am now being scanned every year and I just feel that it is almost just a matter of time before they discover further spread and I am stage 4. I had a scan last week so I am due results end of this week but I am just feeling overwhelmed with panic for the results. 

Hello KJA, I had a mastectomy followed by lymph node clearance in 2010. I had radiotherapy but rejected chemo back then. Tamoxifen for 5 years then in 2015 I was released from annual check ups but was told to monitor myself closely and see my GP if I had any concerns. I have had an amazing 10 years seeing the world and enjoying work and family. I recall whenever I had to have tests of any kind the fear of what the results were going to be was worse than the tests themselves. I now understand this is really common amongst cancer sufferers. Unfortunately last year during the height of Covid I started having symptoms and struggled for 6 months to get answers, paying for ultrasounds and scans. Eventually I was referred to the breast surgeon who treated me in 2010 and in November last year I was diagnosed with  a Grade 3 recurrence which is inoperable and incurable. I tried Chemo this time but it hasn't worked. KJA, I think looking at my own experience I would suggest that if your team have said they have treated you with intent to cure, please take comfort from their words. Your team will not hide things from you. Also your anxiety around tests and results is probably felt by the majority of BC patients. Wishing you much luck, sending virtual hugs. 

Thank you. Sorry to hear about your diagnosis, my thoughts are with you. 

Hi. Thought I would just update. Unfortunately, my scan showed up liver mets. I am currently waiting to see my consultant to know what is happening. I have never felt so lost and desperate. 

Thats rotten news KJA,  im so sorry to hear that. When is your appointment with your oncologist? They will be able to explain the treatment options and there are so many. If you have no onc appointment yet, contact your BCN, they can answer so many questions and chase up a date to see the consultant.

I completely understand feeling lost and desperate having been there. Im so glad you have reached out on this forum,  most of us have been through similar. 

Keep in touch. Chin up 

Thank you so much. I will contact my BCN  tomorrow. You are all such support. 
How are you getting on? X

Its kind of you to ask given your own worries. 

My cancer came back in the chest wall soft tissue but had mutated to triple negative which reduces treatment options. My mets are all in the bones, spine, ribs. Sternum, clavicle, possibly hip. There is something on the liver but likely to be a cyst. I had a one off radiotherapy treatment 3 weeks ago to ease pain in my shoulder and clavicle which now has a fracture in it. Even though the radiation has caused my lympheodema to flare I am now in a good place. Medication keeps pain at bay and I have chosen to have some time to myself. I will see my Onc in a couple of months and probably have a scan to see how things are.

I found it was the unknown that caused me the most stress. Once you understand your cancer type, the treatment options and get a plan in place you will feel better about everything. 

Each day is a blessing  especially when the weather is good. I still work when I can and my family keep me sane.

I will look out for your updates. I hope  talking to your BCN tomorrow helps...sending big hugs. We all need them

Sending big hugs back. I hope your pain stays under control. I think having a plan in place will help. I think the hardest realisation for me is that whether I have 2 / 5 or however many years left, they will all be lived facing treatment and life will never be the same, there will be a new normal. I will definitely be grateful for every chance I get to see my kids growing up.