i have just got back from an oncology appointment, and the oncologist wants me to try Exemestane. I have in the past been on Anastrozole, and when that stopped working I was put on Letrozole, and then Tamoxifen. My latest scan shows stability in the existing problem areas (bone mets) but a “marginal” suspicious few lymph nodes, so he wants me to change meds. I’ve seen that some people on here are on Exemestane, and wondered how well they are on it. I am starting to get scared, as it means a deterioration in my condition. Any info would be helpful. Thank you
Jane
Not been on Exemestane (on Anastrozole), but just thought that THIS post might be of interest to you
Kindest wishes,
Hi Jane,
I've been taking exemestane for about 18 months (I started taking it during radiotherapy). As I was pre-menopausal, the oncologist offered me tamoxifen or exemestane with monthly zoladex injections to shut off my ovaries. He said that exemestane had been showed to be more effective than tamoxifen in preventing secondaries, so I chose that (then had my ovaries removed as I couldn’t stand 10 years of monthly injections).
I’ve found it’s been fine. I started having hot flushes during chemo and I have occasional ones now. When I wake up, or if I get up after sitting for a while, for the first couple of seconds, I feel a bit stiff and then it wears off. I always think that people are so different and you can’t predict whether you’ll get the side effects, so it’s worth a try. I very much hope that it keeps everything in check.
Best wishes,
Sarah
Hi, and thanks for this. At the moment I'm feeling pretty low, as the Tamoxifen only worked for about 8 months, so in my mind things are deteriorating more quickly than I hoped. Still, we will see what the Exemestane does. I've taken three pills and so far I'm a bit sore and stiff, very tired (sleepy tired), but only one or two hot flushes. Thanks for your reply, I'm glad it's working for you.
Thanks lesleyhelen the post looks interesting, and a new drug is always of interest. Take care
I am trying exemestane having found Letrozole difficult (joints and weight increase) Initial exemestane didn't make a difference but now I am lucky enough to be trying Aromatase. am so hoping it will be less intrusive although so far not much if any improvement. I have only been on this brand for 2-3 weeks, so am still hopeful.
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