BC metastasis into bones and liver..! 10 months after getting the all clear

Hi

Sorry I cant help with your question, but by replying it will bump your post back up the list and someone will respond.

L x

Morning amber cr2

So sorry to read your BC has spread so soon, especially as yours was only stage 2 and I'm assuming you weren't offered chemo first time around and a few cells got missed :-/

Maybe you should join the Secondary Breast Group (link) and post this question there - As quite a few of the members in that group have bone / liver spots and could offer you more experienced support and advice; especially on pain relief advice.

Hope this is of some help at a tough time, take care, G n' J

Hi amber cr2, firstly sorry to hear of your diagnosis, I’m sure it must of come as a huge shock!

I have bone metastasis which is currently stable, scan due next month! If it happens! 
I read your post and had to reply. I suffered with pain from the cancer and side effects from the chemo and the side effects of menopause, basically I was a mess. Every day seemed like an effort. I tried all sorts of pain relief, each one having it’s own list of side effects. My GP didn’t have a clue and just passed me on to my oncologist, he didn’t seem to know what to suggest and so I suffered for over a year! 

After finally reaching breaking point and unable to cope with a nagging pain day in day out with no respite. The Breast Care Nurse said “would I consider seeing a palliative nurse?” she very quickly followed that with “not because I think you are going anywhere anytime soon”! It was because it’s the palliative nurses that deal with making life bearable for patients with secondary cancer. As I’m sure you’ve probably been told, secondary cancer isn’t curable but is very much treatable!

So I met with the nurse, we chatted for over an hour. She truly listened, which no one had really done before and she suggested the best drugs for the pain I was describing! Then she explained it might not work straight away and she may need to tweak things, but she WOULD find a solution for me! And she did! 

I can still remember that day when for the first time I had no pain! It was very surreal! I haven’t looked back since! Things have needed tweaking now and again but I have oramorph on hand should I ever need it for breakthrough pain.

So it’s worth asking if your hospital has a palliative Care team or if you have access to a local hospice! I know that probably sounds scary too, but I received a lot of help and support from a hospice nurse. They helped both me and my family to truly understand what living with Cancer really meant! 

I hope that has helped and not scared you! These people are there to help it’s just some oncologists are reluctant to mention them because some patients hear palliative or hospice and immediately think of dying! But I promise you that’s not their only role, they know everything there is to know about pain meds! If morphine isn’t suiting you, something else will. It just takes time Hun.

Hope you can get your pain sorted Hun. Thinking of you and sending lots of love and support your way. Sal xx

https://community.macmillan.org.uk/cancer_types/breast-secondary-cancer/f/breast-secondary-cancer-forum/186433/positive-secondary-breast-cancer-stories

Hi amber cr2 if you can, please check out the positive secondary BC stories (link above). They will help you to see that there is plenty to be hopeful for.

Good luck with everything. Keep checking back in with everyone. There's always support around. 

Best wishes 

Thanks noswad1 I will check out the link.  My head is all over the place for now but keeping positive 

Thank you very for your response I will check out the secondary breast group. my oncologist was equally surprised at how quickly the cancer came back. 

best