Hi
(For new readers who may be interested have a look at my profile)
Had an appointment today for follow up after radiotherapy. The gorgeous consultant (and ladies he is a really handsome man) was very happy with how radiotherapy has gone. But very concerned about how my mobility is deteriorating and how quickly. He asked what tests I'd had done and looked at results. Said I needed an MRI on my back to see what the nerves are doing. Tried to organise one today but no slots. Do has decided to admit me. Home at moment waiting for a call that a bed is free. Likely to be tonight or tomorrow morning. In the meantime he is stuffing me with steroids (bye bye sleep).
I am quite happy to go in. Will hopefully get a whole raft of tests and see a neurologist while I'm there. Okly downside is it is not my local hospital but where I had op and radiotherapy. 75 mile round trip. But I can live with that if they can get to bottom of issues and help improve my current situation.
So sending hubby to pack bag soon on readiness. Better write everything down.....
Thank you all for your greetings and hope you all had a lovely day yesterday. I managed to get out and join the family for Christmas lunch. And I saw my grandson open his presents. I was with them for about 2 and a half hours but then tired.
They will pop in and see me today.
Happy boxing day everyone
Dearest , so glad you got home for Christmas Day lunch and time with the family, and glad you will have visitors today too....
Happy Boxing Day
hugs xxx
Moomy
Hi lovely , so glad you got home for Christmas lunch. Happy Boxing Day, soon it will be time to leave 2019 behind and move on to a New Year. Hope 2020 brings some results from the plasma exchange and a resolution to the housing issues.
Lots of love, HFxxxx
, so glad you were able to spend some time at home with family. Hope you enjoyed their visit today .
Lots of love xxxx
Onwards and flatwards (don't do hills) and keep walking if you can!
Great you got out to lunch with family ... enjoy your visits today. Xx
“ The only constant thing in life is change “
great that you got home for lunch. Worth being knackered I'm sure. Wishing you improved for 2020 and a hopeful heart
Dearest ,
I am, as all the others reading your post will be so glad you was able to join your family for Christmas lunch. I would imagine this was very strenuous and stressful for you, (keep remembering, to take it slowly, there is no rush, slowly, slowly, stop, refresh and a little more).
The main thing is 'you did it' you was unsure if you would be able to - so this was a great step, I'm not sure if too much, but, you did it and like you say you watched your grandson open his presents which no doubt meant the world to you and would make all your effort well worth it.
I am not surprised you was tired after a couple of hours, this is a lot more than you have been allowed to do over the past however many weeks, plus the going outside in the fresh air etc will of added to your tiredness.
Well Done AnnJac, I did wonder if this would be too much for you, I'd even thought they would come to you, very well done for having the courage and strength to do this
Christmas is such a strange time, we all want it to be perfect, yet it hardly ever is, we put so much effort into it, yet often forget the real meaning (two days before Christmas my mum was told she wasn't going to her daughters like always, as this year she had no room!!! - then after a few hours and many tears from my dear mum, the family Christmas was back on.... my dear mum, I can't begin to imagine how she felt, she kept saying to me 'it's not the going to the dinner that I'm upset about, its the "got no room for me"!! owwww
Plus my OH decided it was all to much and didn't want to speak!! (he did try to be golly whilst we had Christmas dinner, then went back to not saying anything for the following 2/3 days!!! - I won't say how I felt about all this).
I have read about so many people coming down with different versions of colds and coughs, some that have lasted on and off for over 3 weeks, many spending Christmas Day in bed - it is all so sad......
The moral of the story is to 'try to be happy with whatever we have, for there is always someone far worse off'.
Oww AnnJac, sorry I have waffled - you know me, always waffling....
Right, I am going ... Sending you great big hugs (this just typed jugs... I'm sending you some jugs), lots of love and kisses, Gail xxxx
Right - here goes ...
Doc came today. This is probably MND. They are going to label it as such so I have access to MNDA aids, support and Grant's.
Still progressively deteriorating and I will soon have very little use of my limbs. When I asked how long he said probably less than a year. Nothing they can do.
Looking to discharge me to new bungalow with aids to give me the best quality of life they can
Love to you all
Dearest ,
all I can say right now is rude, but here goes, sh*t, SH*T, SH*T!!!!!!!!!
so very sorry, are they still convinced chemo set it going?
I’m so glad the view is to get you home to the bungalow with all necessary aids.
Just sending you the most enormous hug, you lovely brave lady.....xxxxxx
Moomy
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