It seems I'm a patient now!

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But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • Definitely take it easy  before going back to work ... 

    xx

    “ The only constant thing in life is change “

  • Seroma it is, will be phoning BCN this morning again. Much more swollen overnight. 

    Argh! 

    Hugs xxx

    Moomy

  • Hi  

    sorry to hear you have a seroma, they ar very annoying things as there is not a lot you can do about them! I have lived with mine now for 4 months. I am lucky that is hasn't ever become infected, but it was certainly very uncomfortable at the begiNing. I had it drained 3 times before radiotherapy then was told to leave it alone. Which I did and I do think the radiotherapy helped it shrink! 

    So now the alien seroma is about a quarter its size and sometimes is almost gone to only come back again a bit after I've done exercise. This I am not going to stop now as it's better for my mental health so I will live for however much longer it decides to stay for! Mine is unde the Axilla scar so towards armpit.

    im off to oncologist tomorrow so will ask their advice on it at this stage too. Hope your call to BCN is productive

    best wishes

    Jac x
  • Hi Jac, mine has gently but fully swollen the whole boob, as the implant is a permanent one it’s hard to pin point a definite area.

    But I guess as it’s still pretty numb I won’t feel any draining! 

    Hugs xxx

    Moomy

  • No you wonot feel a thing, it's very bizarre, seeing a needle but then nothing!!

    Jac x
  • Hahaha, no need for the usual ‘sharp scratch’ then! 

    Just hope for relief from the tight ‘full’ feeling I have at present. Which I’m sure it will be! I guess that deep drain which came out only last Friday might still have been doing a job. It must be hard deciding when and if drains come out, on timescales, especially with a ‘bleeder’ like me. I know I do bleed and bruise easily, always have. So that Heparin like jab after my first operation really wasn’t needed, they made it very clear if the nurse wanted to repeat that after the op was re-done the next day, it was NOT to be administered! 

    Hugs xxx

    Moomy

  • BCN will see me after my routine GP appointment, so around 11-ish, will update after that! 

    Oddly it seems now to be moving a bit, and gathering more towards the armpit side, slightly less ‘tight’ around the middle of my body. So maybe it’s trying to drain on its own?! The whole boob felt much tighter at 4am! (Yes I know that hour of the morning is panic time!) 

    Hugs xxx

    Moomy

  • Ooh glad you are getting it medically checked  

    I took my dressing off yesterday and struggled to get to sleep as my crop top was rubbing against my underarm scar which was achy (nothing untoward though). I took some codeine at 2am , that did the trick. It didnt help that car alarm was going  somewhere a couple of streets away.  

    I am out for lunch today with a friend who had BC about 5 years ago.  We are part of a 'wider' friends group, but since my latest diagnosis she has really stepped up to the plate and been super supportive.  

    As for back to work, my job is office based and I can work from home if needed.  Work have been fabulous (helped by the fact that all my line management are lovely ladies who know my past too).   I dont love my job, but I care very strongly for my colleagues. One man down, means they all pick up the slack. But I also need to have a clear enough head to make the right work decisions when I am in.  Going to keep a close eye on myself. Lots of my London colleagues are up next Wednesday.  It will be really nice to see them if I can (in between medical appointments - two on that day grrrr)

  •  

    I call i 'silly o'clock' when the gremlins of doubt put in an appearance.

     I think we all find it funny how some friends completely fall off the radar - I think of them as those who are glad to dodge the bullet. Then others step up to the plate - maybe lived it with others before or themselves.. Yup careful with the work issue. Planned return to work maybe? Though it was difficult I would always tell staff to stay at home until 100%, that way they then don't need days later off and actually lessen the strain for everyone else. Tightrope walking I called it when some people returned???? Will they falter, will they slip or will they fall???? Working from home sounds the best plan as you can pace it yourself Have a lovely catch up today and hope you get that meet up

    Now all quiet on the headache front here but shhhhhhh don't tell

    Have a lovely day everyone. Be gentle and put yourself NUMERO UNO today

    Leolady56

    Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x

  • @moomy and @Eddiboy....yes,friends who step up....there really is no repayment you can give them,which makes their efforts on your behalf soo so much more precious!!

    I am seeing another this morning who has come to see me every month since my op....she wont take money for petrol,but she is quite poor....she listens to things I love to do,like,being taken for a drive around old Villages etc(I have no car or company),or going to the Art Deco Cinema near where she lives,or bringing me some potatoes and milk(hard to carry)at first,and she wont hear of me getting the bus to hers,even tho I am really well enough to now.

    Where do these angels come from??

    Maybe they are real angels in a world where things have turned very cynical.

    I love them xx

    And @moomy...I wonder whther the gathering of the seroma to the side is because tou slept on that side?my various swellings sometimes did this immediately after my op..but no seroma.