It seems I'm a patient now!

moomy .... xhugsx  

Sending love and hugs moomy xx

Hubs was a bit unsettled after the late afternoon carer visit when they’d washed his back and barrier creamed where he was a bit pink, I think there were a few things not quite right, we think he was a bit cool, so put a thicker cover over, think he also had some stomach discomfort and after he’d had some wind his face rested a bit more, but I also felt he might have been in a bit of pain too, so called the nurses who gave him a bit of a top up, as the syringe driver change hadn’t had time to kick in. We all sat with him reminiscing, and gradually he calmed down, I sat with him for a couple of hours, joined partway through by daughters partner and I think the gentle chats we had then continued to calm him down. At one point his arm got twitchy, I gently scratched his face and especially his nose, that seemed exactly right and he rested again. So much guesswork as he can’t tell us.

Hugs xxx

Just keep following your instinct Moomy, you’re doing everything you can and your instinct won’t be wrong. I’m pleased you’re not alone and wish our love on here could translate to real help in the real world. Love to you all xx

Moomy.  I can't get over how good you are with Hubs. You are a tremendous example and support.

I had almost 8 hours sleep in 2 goes and hubs has been very still but occasionally twitched legs. 

I’ve done lots of little jobs, then after the carers had gently washed and changed him, I went off snd got my Covid booster.

back home sitting with hubs now.

Hugs xxx

District nurses have been, checked his pressure areas, and re-did the syringe driver. All is calm.
Son and I talked about hubs’ 21st birthday cake, it looked professionally made, and I said the name of the lady who made our wedding cake and hubs’ leg twitched immediately! so I think it was the same lady!

Hugs xxx

Sending love and hugs moomyxxx

Good to hear you’ve had your booster and all seems calm whilst you all chat with hubs, he is obviously listening and taking it all in. Please pass on our love to him and of course huge hugs to you and the family xx

Thank you, all of you for your continuing love and support. 
Hubs had a very sweaty episode around 3pm and the sheet was damp. I got called up, (had only popped down for few minutes) they were sponging him down, we’ve packed towels under arms and sides, and rather than the duvet he’s now got a fluffy bath towel over him. I phoned and chatted to one of the lovely district nurses who reassured me, and yes, it is a part of the normal process that the body’s heat regulation begins to falter. We’ve done correct in trying help regulate it all for him. 

Hugs cxx