It seems I'm a patient now!

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But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • Back pain is very slowly improving with plenty of rest but gentle daily get up and go tasks! 
    Hubs is definitely getting more pain again, so the 2codeine plus 2 paracetamol help is slipping; roll on treatment, as he said! 

    Hugs xxx

    Moomy

  • Is he definitely starting treatment in Tues ? No more delays surely. And have the hospice people been to sort out his pain meds? What a difficult time you are having. Sending hugs xxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • No, Tuesday is to sign consent and find out, and then Thursday for the hospice at home team, things are moving still so slowly! 

    My back is a combination of left sciatic nerve and sacro-iliac joint I think, both of which bother me from time to time but not usually together. It improves with rest and stretches but then the pain starts up again when I move, grrr. 

    Hugs xxx

    Moomy

  • So tonight I experimented, to keep potatoes sufficiently low in potassium they need to be boiled and then drained, so I boiled chip shapes for 10 minutes (too long as they began to break) then drained, rinsed and then deep fried. Success, they were fine. Hubs ate enough, plus just over half a fillet of sea bass and a couple of florets of cauliflower followed by cheesecake strawberries and cream. 

    He enjoyed his dinner, that’s a good result. 

    Hugs xxx

    Moomy

  • And his blood sugar stayed up to 4 this morning, also a good result. 
    Bless him though, he is looking increasingly frail.

    Hugs xxx

    Moomy

  • Things are moving terribly slow.y for you  Sending hugs xxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • Footstool, perching stool and bath seat delivered and fitted.... remains to be seen how well they work, though he says the footstool is comfy 

    hugs xxx

    Moomy

  • Hubs has slept quite a bit this afternoon but I did manage to get him to walk around the garden. Sadly it seems he is more frail each time he does, and it’s the cancer rather than the spinal stenosis that’s doing it. 

    He feels too sick for dinner this evening, he hasn’t been sick for several days, I do wonder if it’s the worry of the journey and consultation in Oxford tomorrow (he does brood an awful lot, and worries about everything too) 

    Hugs xxx

    Moomy

  • Former Member
    Former Member in reply to moomy

    I do hope the consultation in Oxford goes well tomorrow and you both manage to get some rest overnight.

    My concerns over immunotherapy restarting tomorrow are minimal compared to what you are going through.  Thinking of you.

    Judith

  • Hope tomorrow goes ok , you really have something to deal with each and every day. Will be thinking of you, hugs xx

    SantababyHeart️