It seems I'm a patient now!

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But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • I realise on looking it up that I know nothing about lymphatic drainage or how best to massage, so have left a message with the BCN’s to ask for advice! That’s IF it’s lymph accumulation rather than muscular, and I suspect it’s a bit of both. other side chest muscles are a bit tender if I prod, but affected side more so. I’ve eased off in the push-ups, and am in any case only doing them from kitchen worktop but they have been a bit strenuous.....my arms have never been strong and I think daily might be  a bit OTT.....

    Hugs xxx

    Moomy

  • Definitely best to get info as if it is lymphoedema there’s a certain way of doing massage plus don’t want it to get worse. Good idea to ease up the pushups. My arm strength is certainly not as good. 

    Xx

    “ The only constant thing in life is change “

  • I am still doing arm strengthening work but trying not to involve thoracic musculature as much.....I was surprised that it’s taken till 3 years on for increased exercise to initiate problems! 

    hugs xxx

    Moomy

  • Maybe it’s par for the course ... cumulative (over) use after surgery, medication and age ... at a guess Thinking 

    “ The only constant thing in life is change “

  • And I’m talking about me Joy 

    “ The only constant thing in life is change “

  • Hahahaha! Me too! We just did a lot of challenging work making a door fit again (swollen with so much rain, it didn’t fit properly for the last couple of months), first time I’ve used a belt sander, but was fine using chisel and mallet at the extremities where the sander couldn’t get. I’ve used chisels before....hubs showed me but I did most, plus put a coat of primer/undercoat on it. Yes I ached afterwards! 

    I honestly thought that three years would have been ok, as I only had minimal sentinel nodes removed to check and they were ok. 

    Hugs xxx

    Moomy

  • I already had osteoarthritic joints so wonder if it’s ‘just me’ although I know of women who have had shoulder problems post op and I was told it’s common by bcn. On my last catch up with bc friends locally they said they’d not carried on doing the post op exercises and they had no problems. I was jealous. I have often said starting yoga etc wasn’t good for me Joy I did have a heavy fall (out of car ... leading foot caught in strap) on op side 4 months after mastectomy. My arm was outstretched like superman and wonder if that had an impact on general function. Bruised/cracked rib/s resulted. Wonder if the Letrozole is a factor as apart from the joint problems it can cause myalgia. Too much choice now. Hope you’re not so bad today.

    xx

    “ The only constant thing in life is change “

  • Arthritis is the pits, , I already had a few small joints and had queried rheumatoid factor a few years back but blood test was negative. Several finger and wrist joint problems though and am keeping an eye on right knee. Physio needed for neck joints a few years back, have dodgy neck joints too! 

    I had some lovely thoughtful cards and presents, a box of Hotel Chocolat and a beautiful book (the boy the mole the fox and the horse) 

    Hugs xxx

    Moomy

  • More showers today but a bit brighter so let’s hope for some sunshine to make everyone feel happier 

    hugs xxx

    Moomy

  • Had a call from my BCN, , about the swelling, she talked me through massage and said I could be as firm as I like, 3 times a day with something like bio oil. She also said that yes, lymph nodes do regrow but if they’ve taken sentinel nodes, (which they have) then they don’t regrow, so there is always a bit of a risk of lymphoedema (wish I’d been told) and she hoped I had modified my exercises! I said I had, described, and she laughed. She said, any time I’m concerned, to phone in. 

    Hugs xxx

    Moomy