AWAKE.........

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  • Hi  , thanks for thinking of me, it’s the post-radiotherapy itchiness, sadly, and seems to persuade the rest of my body to try and follow! 

      , please be kind to yourself, grief hits hard at times, often when we least expect it, something can just set it off. 

    hugs to all Fruit Loops….xxx

    Moomy

  • Night night dear Fruit Loops, sleep well and stay cool and safe, plenty of sleepy fairy dust for all who wish

    hugs xxx

    Moomy

  • Quiet today, hope everyone is ok? 

    Night night Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish

    hugs xxx

    Moomy

  • Owww  I am so happy that you remember her - you know back then when this 'chat' was happening it all stayed in my mind/head as if I could really see all that was going on - even to the waiting at coach/bus station (and now I can remember parts and so wonder which Fruit Loop it was)..... the blessing is haha....

    I didn't make it up - you remember this too hahaha  now we only have to remember her name.

    Weather here today was cloudy, slightly windy and warm - it was lovey.  Later this afternoon we nipped out for a Toby Carvery ..... is it just me but the prices seem to of gone up by crazy amounts .... £11.79!! I really think this is expensive (and cold mash potatoes).

    Sending love and hugs to you all xxxx

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • Hi all, sorry I’ve not been on here recently, I’m back at work and I’m shattered but not sleeping great. Been reading your posts catching up on all your news. 
     so sorry you are going through all the new treatments, that’s just rubbish after all you’ve been through. But as usual you are meeting it head on and dealing with it. Hope the side effects are manageable. 

     I’m so sorry for your loss I hope you have lots of support around you, take care of yourself  

      glad your through your radiotherapy, I’m starting mine soon so will be checking out your tips  

      yes toby carvery is expensive, weirdly my youngest 2 are 13 this week and that’s where they want to go for dinner  they’ve always loved it bless em. I used to work for Mitchell’s and butlers in the main office and so with the staff discounts it was a great option so they’ve been hooked since then  RoflRoflRofl

    I had my op after finishing chemo but I had necrosis of the nipple which then needed another op as I was left with an open wound  looked awful but weirdly didn’t hurt, second op closed everything up so very interested in the tattoo options people are talking about  I’m 4 weeks past that op now and had my radiotherapy planning session today  start radiotherapy on 19th August, 4 weeks mon-Friday slightly worried about how tired it’s going to make me as I’m already soooo tired. I’m also having herceptin injections every 3 weeks which really bloody hurt ouch. Anyone else have those? The aching joints and painful knees are really bad and I have to have those injections for a year so that’s not good. Rolling eyes will that get easier?

    Love to everyone going through treatment at the moment, it’s a pain in the bum but we got this. 

  • Hi  , I have very fragile skin so was worried about it breaking down, I’ve used a whole big pot of Aveeno cream thus far and am starting the second, I plastered it on before I got dressed after each session, and at least twice more during each day, plus drink extra water. So far although it’s a slight browny-red, my skin hasn’t got any worse, though where I rubbed an itchy patch it marked so I’ve been extra careful keeping nails short in case I scratch while sleeping. I’m a week out now, they said effects peak at a fortnight. I got supplied with a tiny tube of stuff to put on in case of any breaks in skin (how a tiny tube is supposed to last if there’s a big break I’ve no idea!) 

    hope that’s reassuring? by the way I don’t normally go brown easily in the sun…oh and the itchiness is a nuisance! 

    Hugs xxx

    Moomy

  •   congratulations on finishing radiotherapy Tada hopefully you’ll continue to have minimal side effects, as ever your cheerfulness in adversity amazes me Heart️  as does yours! And always so caring for all of us and others. We all share your sadness for those poor children and now we watch in horror at what has unfolded on our streets. It makes me so sad.  there aren’t the words to console you with what you are going through but sending you much love and hope you feel the virtual hugs and love you have from here  I found the slower the injections were actually administered, the less the side effects, the first day, maybe two I had a sore stiff leg but after that it improved, try also taking antihistamine, I felt it helped, probably psychological but!

    Love to you all. I’m lying in bed on my parents living room floor not wanting to get up after my brother and father drank much, were unpleasant , but any issues were my fault for being ‘snappy‘ and  ‘not making allowances’. How is it I’m 52 but feel 14 again? SobHeart️

  • Has anyone seen my ‘get up and go’? It seems to have got up and gone today! I’ve had a really quiet day, just done some routine stuff like washing, running and then emptying the dishwasher….not even needed to walk Henry as daughter did his walks today. But I will need to take over tomorrow as she’ll be off for a week again. So I’d better find that get up and go somehow. 

    Hugs xxx

    Moomy

  • Night night Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish

    hugs xxx

    Moomy

  •   well that get up and go isn’t here and I’ve lost mine too. Rofl Why when I’m so tired can I not just fall asleep. Bonkers. Thanks for the tips lovely. I’m getting myself that cream in readiness. Take it easy as I was told the tiredness can come and go over the following weeks after radiotherapy. Not sure we would know the difference with all other treatments we are all having. I love Henry he’s gorgeous. Reminds me of our new puppy, because of course I havent got enough on my plate. Rofl But just look at him? 
    I couldn’t resist  and here’s our other one who’s 5 now! 

    they cheer me up and force me outside to walk everyday which has got to be good right? 


      that’s interesting on the speed of injection as I definitely felt worse this time and it had been delivered quicker  I will ask them to do it slower next time  did you get achy joints and any swelling? My hands and legs were very swollen this time  I will try antihistamine too  thanks for the tip  

    Right off to read my book and hopefully drop off  

    night night all xxx