AWAKE.........

I very much hope this tough chemo has positive outcomes, you are another lady who should be exempt from the rules as you sound like you need help with being so frail and weary, sending love to you xx

LondonLass Hi Sal thanks for thinking about me. We are still Covid free at work and are constantly being tested. I had a nice day today at RHS Harlow Carr, walking in the rain sometimes but nice to be outside. I am also painting my living room a very pale grey called 'Polished Pebble'

seaspirit44 I completely agree with your comments about individual Doctors being undermined. It is exactly the same for us with various 'Teams' making decisions, we have absolutely no say, our job is to look after the patients, sent to us from hospitals, often totally unsuitable. Then the teams ask us to send our care plans, risk assessments, daily notes all electronically in email attachments, so they then pronounce what is to happen. On Monday one woman from the RITT team (rapid intervention treatment team) arrived and started shouting and bawling at our care assistants. Because the paperwork wasn't as she wanted it. I am afraid both Doctors and experienced nurses are just technicians these days.

Violetsniff an old school friend made me those scrubs in April and sent them from the Lake district they were excellent and I wore them to death because you could wash them at 60 degrees. They were not the right colour because I am supposed to wear navy and they were like a grey/blue but nobody cared. I still wear them on night shift as very comfy xxx

Thanks Snowys Mum, that is very useful to know...regarding the Scrubs.Xx

Good morning......

The pot is on.....join me if you can.

There seem to be a few ' niggles' emerging around the group....polyps, hands, fatigue, .......so I'm thinking of you all without listing individuals. ( I still can't scroll back far enough to see everyone's problems, only guessing some from the replies. It's probably the most annoying feature of the site now as on a phone, two pages can fill in an hour or so.)

However, better  news for those following the saga.....Tuesday was my son's birthday and the best present arrived.....the van part. The garage can do it if we take the van at 09.00 today although it might have to be collected tomorrow.  Also some one has offered him some' pocket money' work as a favour helping out putting up fencing. This is just what was needed.....with no vehicle and no prospect of income......large concerts are still a long way off....he was getting quite depressed. Like many others in that self employed sector he had fallen through the furlough net, mainly because last year he worked for companies in three different countries, not earning qualifying amounts anywhere! He will finish the fence, has been told there is still work for him in Portugal and depart next week. It seems frivolous to have been worried when several of you are struggling with severe health problems but I suppose , however old they get, you're always a mother!

Now, if I am going to be at the garage to take him to the fence work...I had better disappear. I started the new tablets from the neurologist and they seem to have led to constipation.  I need to sort that.....plenty more water and prunes for breakfast, I think! Does anyone know....could it be the zinc?

Take care all. Thinking of you all. 

Love Karen

A little souvenir from my jaunt in to London yesterday.  The weather was so lovely I walked from Liverpool Street to Guy's for a face to face wig fitting, which my own hospital isnt doing at present. I'd already had 2 cancelled.  It was fun being a tourist in a nearly deserted city!

Not entirely sure about wearing a wig but I'll keep an open mind and give it a try.

Have a good day everyone

Judith  xx

Hi  lovely pic . I got a wig in readiness for losing hair as plan was EC x6 . I found being bald wasn't  as bad as I thought it was going to be . Think it helped being hat weather anyway but was quite happy to remove hat at home and in cafe etc.

Wig was only worn about three times when I didn't want my lack of hair to be a distraction . It's now happily retired in box . 

Hi , great photo! 
hope you become happy with your wig!

daughter too had one that she never ever wore, but a couple of cheap fun ones that she did. And of course she lost her hair 3 times during her illness. 

I had been doing some G&S productions so she gave me her wigs as she doesn’t need them any more, and referred to them when I got diagnosed saying I could turn into anyone I liked, should I need chemo! Yup, her sense of humour stayed all through! 

Hugs xxx

I liked my wig. If you haven't already or been to,d about wide liners are essential.  ANNABANDA sell them very cheaply. 

I loved that photo. I love walking round London, but sorry you are having to go for wig fittings. I used to have nice hair but now it is a scratty Letrozole thin mess, but never lost it to chemo so I am lucky.

The last time I was in London I walked from Euston station to St Pauls, along the river and back to the British Museum before back to Euston for the train home. The next day I couldn't walk for my leg aching but it was worth it.