AWAKE.........

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  • Former Member
    Former Member in reply to LondonLass

    Hi Sal I’m ok thanks .got back from theatre late yesterday so ended up being kept in overnight.i stupidly told everyone including myself that as this was a simple procedure,just putting in the tissue expander that they had to remove in August when the LD flap op went wrong I would be fine.nothing too it.it was a short op but it still hurts like hell.oh well at least it’s only one wound this time and drum roll please,I finally have something resembling a boob.yeeah.only one more procedure to go

  • This is a pretty special place. This thread, and the wider community. So many folks from so many different backgrounds, with different versions of this bl00dy disease. And yet we all pull in the same direction. Thanks to all of you for being the courageous, special people you are.

    Off to see how many minutes of sleep I can get in between bouts of sneezing and coughing.

    Sleep tight

    xx

    Karen 

  • Former Member
    Former Member in reply to toxophilite

    Hope you feel better soon Karen.good night everyone 

  • I don't know where to start to reply to your post Sal but I'm so glad you're back. Glad because it means that you've dug yourself out of the ditch, or at least started to.

    As for not fitting in - that's complete b*ll*cks if I may say so. Obviously none of us envy you having secondaries but plenty of people here have issues (eg Karen and her heart), perhaps not as serious as yours but troubling to them nonetheless. And anyway, what's actually wrong with us isn't the common denominator. What we have in common, and we all do, is that we've lost the sense of invincibility we once had, and nothing can bring that back, no matter how healthy we are at this minute. Plus the fact that we have trouble sleeping lol.

    And on friendship - when I was young I always felt I didn't fit in. I was (and am) fat, plain and bookish. I didn't know how to flirt and I didn't enjoy activities like clubbing. I was entirely intimidated by the mean girls. Now of course I know that I was stupid to worry about it, but of course I did. See the similarities?

    Anniversaries - of course you're jealous, you wouldn't be human if you weren't. But remember they may be positive on the surface but not always so underneath. For example, if I say I'm two years NED that's great but that also means that it's only one year out of 10 dealing with the wretched AIs. And who knows how long NED will last - none of us. You do have anniversaries or milestones of your own that you can celebrate, you just need to find them and value them. For example, how long have you been stable? How long since you went back to work? And so on. 

    I hope for your sake that seeing a psychologist will help you. I think there's great potential there if you let yourself. 

    So finally, let me say again that we all love you for who you are, not for how many people you help or how healthy your are or aren't. Just keep being you. Oh and yeah, sometimes I can't deal with the newbies either so ignore them for days. 

    Sent with lots of love for you

    Lynn xx 

  • Former Member
    Former Member in reply to LondonLass

    Hi London Lass

    I know what you mean to some degre, I am at secondary's on curable stage, chemo has stabilised the bone secondar cancer for now ad I'm still on monthly injections to try and stren my spinal affected areas which I am aware are extensive. I also have traces in bowel lining and we are assuming this area will be affec in the same way am waiting for scan resul for this ctscan.

    i have felt sad and cheated and bit of the green eyed monster when I see some of the comments on this site, however I prefer to feel bit uplifted by the positivity , the secondary site does sometimes feel a bit dark sometime.

     Most of the time I fell strong and positive however I do still find moments and situations that make me cry but that's ok, like you we are human, do not worry the one certain thing is that we are not alone.

    Massive ((((((((((Hugs)))))))))) from me and I'm sure lots of others on this site, I hope you have a good weekend xxxxxxxxxx

  • Evening all, although I suppose I could say Morning all, although I hope I can go back to sleep shortly!

    Anne I hope you are managing to get a bit of sleep and the pain isn't too unbearable! Offering you a (((((((gentle hug))))))!

    Karen my snotty nosed buddy, what can I say except........

    BLESS YOU! I hope you feel better soon! ((((((((((HEALING HUGS))))))))) xxxxx

  • Feeling very touched by all the comments and a little annoyed at myself for being so 'stupid' but I suppose none of us can help how we feel. It is what it is and I/we have to learn to live with it! Lynne I completely get what you are saying! I know these anniversaries are a double edged sword. As you said I have anniversaries too, but they aren't ones you can look at in quite the same way! Looking at how long you may of been stable starts reminding you that eventually the drug will possibly stop working (according to oncologist) so the longer it's been in this case the more scary it is! So I personally prefer not to think about these dates! I just stick with going from scan to scan with my fingers firmly crossed.

    Well after all the positivity on here, I can see that whatever the situation being AWAKE is the one shared issue! So my lovely non sleepers or my friendly day time readers, I think it might be time for a much needed..........

    GROUP HUG! 

    Right, now for some more sleep!.........I hope!!! Xxxxxxxxx

  • Here I am again AWAKE! What a lot of wonderful posts by wonderful people. As Kacang says " it's more about what we have in common than what makes us different. 

    Lass, I am a " mad cat lady" coming from a whole line of cat mad women. In fact it was your tales of your lovely cats and their eccentric names that kept me looking out for you.......it's not all about the C word and gave me some light relief at a very troubling time. 

    i am now down to one cat who  is a rather fat tho agile black and white version with a very sweet, polite unassuming nature called Lenni. Much to my  disappointment she is no lap cat and will only allow fuss at arms length. All my cats have found me....unexpected litters, strays, unwanted pets and have all been a big part of my life.

    In the past we have had a succession of pet rabbits that lived free in the garden complete with burrows. Many a morning found me in the street in my nighty rounding up the latest escapee. 

    I find that my moods ebb and flow. Hoping that the tide soon turns for you.

    K xx

    P.s. Mrsox.....you are just wonderful! 



    I used to walk around like everything was fine, but deep down, inside my shoe, my sock was sliding off.

    Now I walk around and everything is  fine.....one day I am going to by new socks with strong elastic......but in the meantime I am learning to stop and and pull my sock up! 

  • Kathy look into my eyes.......

    YOU ARE FEELING SLEEPY........YOU SHALL PUT DOWN YOUR PHONE/IPAD/LAPTOP AND GOOOOOOOOOOOOO TO SLEEP! WHEN YOU AWAKE YOU WILL REMEMBER NONE OF THIS! 

    Click on the picture for the full effect! But warning it's got flashing lights!! Xxx

  • Former Member
    Former Member in reply to LondonLass

    Hi everyone. Wide awake sleeping tablet not working. Going to be a long day....Hope your all ok.x