AWAKE.........

This online shopping is getting stressful isn't it  moomy I've got Morrisons slot for 18th so can edit that one . Mainly gone for store cupboards replenishment . Fruit and veg from wholesaler coming tomorrow  

Then up pops a message mid morning to say Iceland now got delivery slots only for isolated and vulnerable . With slots for tomorrow . So just had a frantic virtual run around Iceland getting dairy , deli ,bread etc very little frozen needed .

shopped more in the last week than previous month

margaret x

Well done keeping up with the exercise moomy. I haven’t got around to piano or singing yet! Have walked round and round the close, and done some Tai Chi. Our instructor sends us a daily video to keep up the enthusiasm. On my walk I managed to get my hand entangled with a rose bush and was impaled by 2 thorns—not fit to be out on my own!! xx

Well, my timing is officially abysmal.

Just within the last 2 weeks, I finally started to recover from the unexplained condition that had me in and out of hospital throughout January & February. I had hopes of starting treatment again. (I haven't been able to have any since November.) My next consultation was going to focus on whether I could still join the trial I was due to start in January, or should try something else. 

That would have been on Monday 23rd. Instead, I had a phone consultation where I was told that all my treatment is on hold. There are no options open to me. No new patients are being accepted onto trials for the duration of the crisis, and the alternatives would further damage my already compromised immune system. The oncology team have decided that, right now, the virus is a greater risk for me than my cancer. Even my scans gave been cancelled. 

So I'm shielding indoors for 12 weeks or however long it lasts, untreated and unmonitored, though we know my cancer is spreading.

I handled it quite well for thr first few days, but I've been having a major wobble since then. I alternate between panic and floods of tears. I'm handling it by keeping myself as busy as I can, but it's difficult. I know I'll get over it, it's just taking me a while. 

Sorry. Just needed to get that out.

Awwww, bless you , sending you mahoosive hugs with lots of love

more hugs xxx

A big Waitrose delivery which has to keep us going for almost 2 weeks and I think/hope it might!

thanks hugely to the town network I’ve got yeast and flour so tomorrow for breakfast we will have a fresh loaf! Yay!!!!

and the lovely Sugarsmith shop that I used a lot for ingredients when making ‘the’ cake for the Bombe celebrations, has yeast which she is packaging up, costs a bit more than it normall would but hey, who cares? And our neighbourhood of volunteers will buy us and then we will do a bank transfer! so at least then my bread machine will be used well again!

hugs to all of you fruit loops xxx

Oh , AP7 , how I feel for you , I am also off treatment and " sheltered " , fed up with the media not mentioning cancer patients with secondaries having their treatment stopped /paused , and the effect of that ! After the long wet winter I felt I " needed "  spring !!! I have been doing gardening . I treally hope this is over soon and you get on a trial and it works for you …...best wishes

Aww! So sorry  nothing much to say. That could make things better for yourself and others being put in this position . 

Except we are all still here for each other to support and listen as best we can so please don't apologise you have every reason to be as mad as hell !

Shielding is enough to give anyone a wobble added to which your situation is enough for major wobble 

I'm shielded but hubby isn't he can go for excercise once a day but he not going in shops in case he bring something back . 

Keep coming on to post and have a rant it'll do you good far more than bottling it up .

margaret x

Hey , that is surely a very big heap of sh**. You were always popping in so upbeat during your horribly endless hospital stays, now you've escaped only to be slapped down again with the 'no treatment/ no trial' nonsense. So sorry, and also for all the others here who are having treatment postponed, halted etc Very very unfair. Don't know what else to say, other than that we do all care. 

Lots of love, HFxx

Night night fruit loops, hope you can sleep well....

sleepy fairy dust is to hand for any who wish it (there’s plenty!) 

hugs xxx

Night everyone 

Margaret x