AWAKE.........

LondonLass - massive hugs to you Sal! Sorry that the counselling session was so tough, but hopefully it will help in the long run. Congratulations on the charity night - what a fantastic amount of money to raise! 

- good(ish) news on the results - I think that some bloods can be affected by various things - I have some enzymes that seem to go up and down and the onco doesn't seem too bothered about them as they can vary for different reasons. As for the Cape - what a strange thing for the onco to tell you! My previous oncol told mt when I went on it that she had people on it for 2-3 years, which appears quite a 'long term' drug when it comes to chemo! Fingers crossed that it will be effective for you for as long as possible! As for the tablets not being ready - sounds like a farce - someone needs a slap, and it's not you!!! 

Lacomtekp - hopefully the heat has waned over there now - I don't know HOW you cope with it, even if you acclimatise - I would have melted into a large pool of fat by now (might be good for me to lose a bit of weight though!) 

seaspirit44 - glad that the skin biopsies went okay - fingers crossed for positive results (well, negative results, but you know what I mean!) 

Snowys Mum - you are the guinea pig whisperer! Obviously the ideal person to foster sick and injured pigs... 

toxophilite - CONGRATULATIONS Karen on your GMB - that's a fantastic achievement, especially when you haven't been shooting that long!  

Hugs to everyone who has appointments, scans or results this week, and to those who haven't but need one anyway...

Oncology appointment yesterday - cancer still stable - hurrah! Oncologist told me (when I told him that we were celebrating the fact that I'd made it to over the year that he'd predicted) that I am the longest person he's ever had on the drug I'm on (that's not grammatically right, but I'm sure you'll get my meaning!) so it must be my 'wonder drug', especially as I'm only on 50% of the proper dose. Long may that continue! 

They found a new abnormality on one of my kidneys - 17 x 9 mm - they're not sure what that is. However, I had what we thought was a kidney infection a couple of weeks ago, but oncol thinks that I may have passed a kidney stone, which could explain the abnormality. We're monitoring that! If it's not one thing, it's another. The onco told me that if I get the same pain as I did a couple of weeks ago, I have to sieve my urine in case I can catch a stone so that they can send it to the appropriate department! 

Opthalmology appointment tomorrow about my cataracts - hoping they can do something to slow down the deterioration in my eyesight - new glasses again last week - that's five pairs since Christmas. When the staff in the opticians know you by first name, you know something needs to be done! 

Anyway, better get going - chemo today. Fingers crossed for a short session - they tend to be REALLY busy in the mornings and although my chemo is really short, I can be there for several hours just waiting. Knitting and crosswords at the ready... 

Hugs again to everyone!

Great news , and you’re probably right about your wonderdrug, it keeps being said that the way forward will be to tailor each drugs regime to the individual. You’re at the forefront! HFxx

Good news, Weeblemum, you’re obviously on the right dose of the right drug for you! Hope it doesn’t take for ever today!

Love and hugs to all who need them today! xxx

Thank you , and that is really good new news ! Xxx

AAAAAAAAAARRRRRRRRRRRRGGGGGGGGGGGGHHHHHHHHHHHHH!!!!!!!!!!

I can’t do this anymore  I’ve had enough  These flushes/sweats are driving me nuts WHY CAN’T I GET ANYONE TO LISTEN? My body clearly hates me  it’s punishing me  GIVE ME A BREAK.........PLEEEEEEEEEEASE!

Awwwww, gentle cooling hugs dear LondonLass, I just switched the fan on, too!

hugs xxx

Oh ,Sal , so sorry you feel so fed up . My cousin saw an endocrinologist for her flushes ,I know you are already seeing lots of professionals .......

wish someone could help you , or st least listen........we are listening anyway ...........cancer treatment seems to leave problems behind it !

hope tomorrow is better

beast wishes to all ....x

Hi LondonLass hugs to you do you know I was just about to post Aaaaaaaarrrrrrgggggh so can we share. I'm fed up !!!!!!!!  Celiac flared up massively to the point in wondering if it's something else I'm  eating Gluten free food but I'm so ill plus mega hot flushes started. Now my thyroid reading out so another appointment

Also I rang BCN and been took off implant list i just couldn't cope with all my doubts but now I'm going to be one busted forever now I'm sad and doubting everything. I'm so grateful to be cancer free but why couldn't i just do something for once instead of googling and questioning  I've missed you all xx

Londonlass/ Optimistic

Did you look up those homeopathic remedies I took....

Black Cohash.....evening primrose. to see if they are compatible with your treatments because they certainly helped me with flushes etc and having more energy. 

My menopause was long over when I was diagnosed  with bc and it was triple negative  so no extra drugs so I have no idea if they would be approved alongside your meds but if they are, I recommend them.

I'm so sorry you're  feeling so fed up with it all. There must be others who can suggest alternatives that helped them. It is terrible you feel no one is listening to you from the medical side but never forget we are.......

Big cyber hugs to you both. It's  cooler.....you may have a better night.....

Love Karen