AWAKE.........

Hi all

Good night's sleep here. I was woken by a bright full moon shining through the window.( spare a thought for teachers, end of term and a full moon, all they need is a bit of wind and all hell will break loose).

Hair cut today ready for holidays. Going on the bus! That should be fun. It only involves walking half way to destination, being charged a fortune £3,then a journey through different town before getting to close to where I want to be, then another walk. Journey time in the car 5minutes. Taxi £4. But hubby says we need to economize as we are retiring!!!! After all that I'll be 45 minutes early but I can't risk later bus.I think if there's someone else at the bus stop I'll suggest we share a taxi! Now that's an idea for an app.

I hope everyone has a safe day.

What a ridiculously complicated journey ! Hope it did not rain on your new hairdo xx

Hi 

The whole thing took 5 hours for a cut and colour. And the government keep cutting public transport.

Hi,

Saw haematologist yesterday & the lesion is stopping my lymph nodes in my leg from draining. My leg is twice the size as normal & very heavy I also have one extremely large buttock, so when I sit I am lop-sided! 

He is getting me in for a strong infusion of chemo this week then back onto other. Hopefully this will shrink mass.

On steroids for 4 days, doubled the thalidomide when I told him my last really good sleep was Dec 2017, said GP aware but never listened.

Went to inject at 10pm next thing I woke  7.30 on top of sheets, lights on, dressed. Did not wake at all! So lovely to be so zonked out.

Luv Scilly xx

Hi Sal,

Not been on this site too much happening.

Wish we could do more for you, no-one can understand unless they have been in your position. Just glad you & everyone on this site is so helpful kind & supportive.

Sending you another big hug.

Love Scilly xxx

it sounds as though you are having a really tough time Hun! Wish I could give you a real hug, but sadly my arms aren’t that long. So instead i’ll Send this......

Hope the Chemo does the trick and your leg settles down soon! We are all here for you and I’ll send LP along to keep you company, anytime you need him! Take Care Hun xxxx

Hi , hope the hair appointment went well. I was exhausted just reading about your journey! Have to be honest for the sake of a few pounds, I would of called a........

It would of been less stressful and taken a lot less time!

Goodnight EVERYONE, Sleep Well xxxxxxx

Hi Sal,

I really need that hug!.

In touch with daughter tonight & her chemo on hold as she cannot stay awake. She was a bit anaemic a week ago so has to see consultant today to find out what is happening.

Since Sunday I have tried not to cry too hard as I gave myself a nose bleed. Cannot even have that `pleasure` now!

Kidding. I spoke to my friend known from when we were 5, & she started to cry on the phone. She had been away, so I did not contact her as normal because I did not want to spoil memories of her holiday. I wrote down what had been happening. She wanted to know what she could do. She lives 1 hr away.

Told her be there for me & do not cry on the phone, it does not help me.

Drugs not magic mushrooms tonight.

Great big hugs back 

Love Scilly xxx

Hi,

Read your post about touching.

My haematologist has patted me on the back and also done the same to my daughter since my problems  have altered.

I am on first name terms with him and this week he put his arm on my shoulder and kissed my cheek

One of my friends who had cancer.last year will not say the `C` word, and I  still do not know exactly what the cancer was.

There is nothing more uplifting than a kind touch.

love Scilly xx

I feel for you right now. Not only dealing with your own health but worrying about your daughter, it must be so hard.

It’s at times like this it’s easy to find yourself feeling very isolated, feeling as if no one understands or no one cares. But we do Hun, you will never be alone while the Fruit Loops are around........

Today this pic is for you! But the meaning behind it is meant to Each and Every Fruit Loop! Together we have a very special bond. No Fruit Loop will ever have to face anything alone! Day or Night someone will always be here to listen! 

I hope you can manage some sleep! Looks like i’m Heading for another sleepless night! Oh well, who needs sleep! Xxxxxxxx