AWAKE.........

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  • Former Member
    Former Member in reply to JoDec

    Hi Sal,

    I took your advice and learned to do piccies during my sleepless hours. So the first one's for you, sent with hugs.

    Shey xxxxxxxxxxxxxxxxx

     

    PS - not very good but still learning x

  • Thank you ladies, all of your messages mean so much, and I wish I could explain how I feel but I just can't find the words. However I saw this and thought it sort of explained things, sort of..........

    I'm not sure if that's going to make any sense to any of you, especially those of you who don't know me that well. 

    But I wanted you to know I am still here for all of you and I will continue to post as many pics as I can find! Because we all have BAD days and that's when this AWAKE thread, really has been a lifesaver!

    SLEEP WELL ALL, hopefully I will find MY RAINBOW tonight! Love to you all, Sal xxxxx

  • Former Member
    Former Member in reply to LondonLass

     You spoke for me as well, I just sometimes want to go into a corner alone.

    Still no one else with my Metaplastic T N B C , I asked my own doctor today

    he just said its bad but you are strong ---oncologist sorted a mix for me----------

    Think I  will have 2 Nightcaps .

    Start chemo on Fri after   Picc line Wed    Titanium marker Thurs. My life revolves

    round hospitals. I will be out with my son if im not bad after Chemo.

    Sleep well--- C J  x x

  • Sounds like you have a busy week CJ, wishing you all the best for your upcoming appointments! Let's hope once you've started treatment things will settle down for you!

    I on the other hand have come to the conclusion that........

    I don't think it's ever going to get any better, so now the trick is to try and make the most of it?! Easier said than done xxxxxxxxxxx

  • It was very quiet during the night. Does that mean that you all slept? I bet not! I have had a bad night, sleepwise and decided to just stya awake when it got to almost 5. I tell my other son today at  midday. I wish I could avoid telling him, but everyone is right and it has to be done. Wish me luck! X

    Jo Jo x

    None of us wanted to be in this group, but we are glad we're not alone.

    Diagnosis 2/8/17 IDC Her2+, 22mm, with spread to several lymph nodes. TCHP chemo started 23/8/17, Mx with immediate, temp recon 24/1/18, rads 20/3 to 10/4/18, Herceptin by IV until Nov 18. RR Mx Jan 23. Still waiting for reconstruction, but opting for simple implants, as opposed to Diep, due to long waiting lists for diep.

  • Rubbish night for me.......it's going to be a long day!

    Jo, Good Luck with chatting to your son, hope it's nowhere near as bad as you are imagining!

    I'm still feeling down and blue but to the rest of you.......

    Xxxxxxx

  • Former Member
    Former Member in reply to LondonLass

    WOw ladies I thought getting up at 4 in the morning was bad enough as come into work early as am studying as well at the moment.

    I understand regarding the tiredness by 12 pm today I will be ready for a sleep but this will not happen as I think my manager would not be too impressed.

    JoDEc good luck with telling your son I know it is hard as had to tall my older sibling back in my home country but just glad my mum in no longer with us as I don't think I could have told her. She passed back at the end of April this year.

    Best to all xxxx

  • Best of luck with telling your son Jo Jo. My husband says nothing is ever as good or as bad as you think it's going to be. And he's right! 

    Hugs

    Lynn xx 

  • Hi Lynn, Sal et Al, well I told my son and he was fine. There were a few tears, but we then just talked and I assured him that it was all in hand and very treatable. We had a lovely lunch and he was fine when I left him. No doubt he will think about it and have a few wobbles, but he knows I will be okay. Xxx

    Jo Jo x

    None of us wanted to be in this group, but we are glad we're not alone.

    Diagnosis 2/8/17 IDC Her2+, 22mm, with spread to several lymph nodes. TCHP chemo started 23/8/17, Mx with immediate, temp recon 24/1/18, rads 20/3 to 10/4/18, Herceptin by IV until Nov 18. RR Mx Jan 23. Still waiting for reconstruction, but opting for simple implants, as opposed to Diep, due to long waiting lists for diep.

  • That's great Jo. It's so hard telling family.

    Sal - just for you :

    Karen