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Well Everyone......
Jenny () behave yourself and hopefully you will be home soon!
((((((((((HUGS)))))))) to all. Xxxxxxx
Good morning LondonLass and everyone, thought I would say hello before i try and get a few more hours of sleep in. It’s getting very tiring of late, we’ll actually pretty much exhasting for a long time but unfortunately thats how it is, although we all wish it wasnt and i wish sleep didn’t keep eluding us. Although i am somehow sleeping much better recently. I have an early train so probably won’t be about later as i be too much worrying I haven’t forgot something that i need to take. I am off to the seaside again, well it be a good distraction from all the crap of late. I can’t believe how unlucky i have been but actually feel better knowing what the problems are. I was beginning to feel it was all in my head and simply just stress. Because i was low stage I also was beginning to feel tgat the cancer had been missed and was still lurking in my body but maybe it’s because of the cancer that things have actually been masked by that and i was right to keep pushing for answers. Yet there serious problems and i have some faith tge GP i can actually trust will get me much better, shes so on the ball and doesn’t miss anything, she checks everything but because its been so complicated she’s looked into things one step at a time which is actually better because she can see a clear picture tgat way. It was her who spotted the renal problems in the first place and also she was never happy about my heart rate but was always trying to work out the problem. If I didn’t have one of tgese activity tracker on, I probably wouldn’t of realised its my heart rate that is effectively messing with my balance and I momentarily dizzy so its been worth every penny, because once i saw it I could enform my GP she got tge ECG and heart monitor on and spotted the cause. Its just a matter of seeing if its the medication that i am currently reducing has caused it rather then a heart defect that has caused tge electrical currents of my heart to go wrong.
Anyway enjoy tge weekend everyone and hope your out of hospital soon and i hope you can keep out of hospital after your chemo but also know that your being well looked after.
I hooe I haven’t forgotten anyone but my memory has gone all confusing and I am forgetting things alot at the moment but take care everyone, enjoy the weekend as best as you can.
Hi and (hopefully) happy weekend to all fruit loops!
I read back yesterday and was going to write this after my review with the oncologist, but ended up with another 6 hours in A&E as he wanted an emergency MRI scan on my spine! Good thing was, although there are lots of mets in spine and pelvis, there is no nerve compression or fractures that would explain the weird sensations in my leg that have started over the past couple of weeks. Means that we can carry on with chemo at a reduced dose and that I don't have to have massive doses of steroids and radiotherapy on my back! So, it was worth picking up more frequent flier miles in A&E...
I'm sorry if I've missed anyone off the list - massive hugs to everyone who needs them.
Optimistic - sorry that you've had a bit of a 'down' time again recently, and poo to the tax blip - hopefully that can be sorted very soon. These things always seem to come at the times when you least need them!
toxophilite - firstly, welcome home! Love the pictures you've put up so far - more please! MASSIVE congratulations on the 8th in the country ranking - that's a huge achievement in a short time - just shows how determined you are and is a fine example of what people who have been affected by cancer can do! Also congratulations on the clear mammogram - always a relief. Sorry to hear about your poor cat - hope he will be better very soon - I worry as much about my cats almost as I do about my son when they're ill - partly becuase they can't tell you what's wrong - you end up watching them all the time!
- hurrah for good scan results but boo for your visit to hotel NHS - hope you're feeling okay and that your stay won't be a long one - what are we fruit loops like???
seaspirit44 - you both looked fantastic at your reunion! Poo to the taxi driver - that's just bad manners. I fell out of a taxi in London once - it was further down than I thought and my knees just gave way. I think the taxi driver thought I was drunk and just ignored the fact that I was sprawled on the pavement. My friend tried to pick me up, but she is smaller than me and has osteoarthritis so she couldn't. It was almost a minute (seems like a long time when you're laid out in the gutter!) before I managed to get up, and the driver didn't say anything, just seemed annoyed that he couldn't get away whilst his door was still open! My friend and I laughed about it, but it was embarrassing and would have been nice if he'd have at least tried to help!
GBear - sorry to hear that your friend passed away, but at least he's no longer suffering and in pain. Sorry tp hear that you're still having a rough time with your health - must be very frustrating for you. Hopefully you can have a restful weekend. Hugs to you!
Snowys Mum - ooh, very jealous of you going to see Noel F - he's a bit of a crush of mine, although I'm sure he's a very difficult person to live with or work for - very driven!
- hope you're doing okay! Shame that your liver function has dropped, hopefully it'll be a blip and that it will improve a bit. You seem to be managing the chemo so well! Thanks for your concerns about my chemo - they are jiggling around with dosages and other tricks to help stop my regular visits to hospital. The next round will be at 50% dose - hopefully that should be the end of the problem!
LondonLass - thanks for the PMs Sal! Glad to hear that you've got your appointment for physio! Hopefully some exercises will help, although they might be difficult for the physio to demonstrate!!! And a belated congratulations on 14000 posts in the best thread on the forum!!! Sorry that you've had some down days and sleepless nights - keep on keeping on - it's the only way to go!
- have you got over the posting problems yet? With the animated GIFs, I find that some I can just copy and insert whilst others I have to save to my laptop and then upload. I don't use a phone or tablet to access the forum so not sure what happens with those! Heartburn - yuck - it's the most unpleasant thing - I take Lanzoprazole twice a day and then take Gavsicon Advance liquid to deal with breakthrough pain if necessary. The GP has also prescribed Ranitidine as an extra as you can take that as well as the PPIs apparently. I keep that in reserve in case! I've also been known to glug cold milk to try and reduce the acid, which sometimes helps. Hope you get some relief. As for the denosumab - I have the jab every 4 weeks. Apart from a little bit of pain in my sternum (where I have mets) after the first couple, I've had no side effects at all from them, so fingers crossed that you'll be the same.
- thanks for the mutual support whilst we were squirreled away in our respective hospitals! We must do that cheese scone and coffee again soon...
Big hugs to everyone
Hoping to have a quiet, hospital free weekend before appointment to get new prosthesis fitted on Monday as my non-affected boob has grown recently due to oedema! It's all go - not sure how I ever had time to go to work. By Monday I will FINALLY have got to my pensionable date (I made it - yay!!!) so I might eventually get some money coming in by the end of November...
The banter between us while we were in our respected hospitals did relieve the monotony. Who would get their blood results back first, who got their meds on time and what we got for lunch? I had serious cheese omelette envy one day when you said that was what you had ordered and it was the first thing I ate when I got home!! But as much fun as it was I hope we don't have to do it again as I'd much rather do the cheese scone and coffee thing and don't forget Santa!!
Angela x
Ah , I have missed you! I hope the reduced dose of chemo keeps you out of hotel NHS, and that it is working on your mets, especially your chest.
Poo to selfish taxi drivers! Only a few, most I have encountered have been lovely, but you remember the bad ones.
Have a good restful weekend. Xxxxx
Onwards and flatwards (don't do hills) and keep walking if you can!
Violetsniff, rubber gloves! Xxxx
Onwards and flatwards (don't do hills) and keep walking if you can!
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