AWAKE.........

Proud Mum home from a concert in which son played a small but beautiful solo cello part. 

Night night Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish 

hugs xxx

Thank you ladies I have had a better night .Have increased mouth washes and alternate between the one given to me from the hospital and a salt wash . Managed to eat some  more little and often is the way .up at 5 this morning  on the plus side beautiful sun rise and today is,a new day .Enjoy ladies xx

Night night lovely Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish 

hugs xxx

My oncologist prescribed me some Lorazepam for the nights when I went to bed feeling really rough and wouldn't have been able to sleep because of it.  Didn't take often but it did the trick.

Hope you feel brighter soon, my last chemotherapy was on 29th April and I am starting to feel more like myself, if you ignore the lack of taste, continued dry mouth and tingling feet.  Radiotherapy starts on Wednesday.  15 days of that then the dreaded hormone therapy. 

Thank you I managed 5 hrs last  couple of nights .I have upped my mouth rinse to 5 times a day now using the one they gave me and salt rinses it seems to have helped but it's the taste !! Everything tastes like metal even water !!  Which has a knock on effect as little food and sleep makes everything seem  worse .and the dry mouth at night !!

Glad you have finished your chemo it really is a marathon we have to endure .good luck with the radiotherapy .I'm to have 5 or 15  they haven't stated yet. But I have a 4 week break after my last chemo which is Friday 13th June !!

Take care x

Loving the Flossyknicks, some fantastic creative names on here

Hope things get easier for you and your sleep continues to improve x

Night night dear Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish 

hugs xxx

Oh Flossyknicks , my cat is always trying to get me up at 5am for brekkie, so smiled at that post! I've not had chemo, or surgery, or radiotherapy (I do have cancer, lol! but metastatic at diagnosis so treatment journey very different from primary cancers). Sounds like a very very hard time for you just now, hope it eases soon.

 WhatHappened I'm very intrigued by this new hobby!!

I had scan results today. Mixed bag. Breast tumour shrunk, lymphs normal size, but bone mets look worse. Bone scan was last done in Nov, the one 2 weeks ago shows progression. New oncologist is confident that the treatment is working, it's possible that from first scan in Nov to starting treatment in Jan that bone tumours grew and are now healing. Her advice on what I can and can't do physically completely contradicts what old oncologist said. He basically said not to do anything. Absolutely no exercise except walking. Not even the gentle classes run by Maggies.  New oncologist would encourage me to do any non-contact sport or exercise. Doesn't think it's risky at all. So I'm just confused and a bit concerned that bone cancer has spread and worsened, and not convinced it's responding to treatment. Oh, and nurse who was meant to be there? Who assured me repeatedly that she'd be there after not being there last time. Yeah. She was only 25 mins late this time which was so very unhelpful. 

Sounds confusing BoxOfFrogs ? Who to believe?!? 

Night night Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish 

hugs xxx

Well apologies for not coming on earlier but been a busy day, getting more bloods done in the hope I might get to have the 2nd round of treatment! But heyho that’s life!

ANYWAY more importantly today is a Special day for me and in a way for everyone who has ever posted on this thread and found it useful or supportive in some way! 
As today marks the day/early morning that I couldn’t sleep and I decided to start this thread! 
So I would like to say HAPPY 8th ANNIVERSARY to the AWAKE thread!

In those 8years I have met some wonderful ladies. I have probably chatted to more people than I can remember. I along with all of you Fruit Loops, have helped ladies during some of their darkest times. We didn’t always have the answers, we didn’t always say what someone wanted us to say BUT we gave advice, support and some giggles. Which helped people get through the dark lonely nights! 
I recall many a night where sleep just wouldn’t happen and I was alone with my thoughts. So I would turn on my iPad and see who else was around and yes there was usually someone there! Overtime these people became more than just a person in the computer screen, they became the most trusting and understanding friends I could of ever wished for.

In a place where my true life friends were drifting away, these friends grew closer. They understood what I was going through, they allowed me to moan ( okay I might of moaned a little) they shared their thoughts and feelings with me but most of all we found that in the darkest and loneliest of times we could still LAUGH! That is what the AWAKE thread meant to me. A safe place to laugh when those in the real world didn’t understand that through all the horrid treatment that I and others went through we all just wanted a place where we could still laugh and smile.

So my Special Fruit Loop Friends. For all that have moved on, for all of those I still see as friends, for those who I still text or message and for those who are no longer here but forever in my thoughts. Today is about remembering all of you and hoping this Thread continues on to help many more people in the way it’s helped me.

May many more friendships be formed and laughter enjoyed.

Night night Fruit Loops and remember….

Love you All. Sal xxxx