Good evening everyone
I have seen two Macmillan TV adverts this evening, as well as lots of adverts on their Facebook site - and this website - for Brave the Shave,
This is encouraging people to raise money for people affected by cancer by shaving their head - it has fostered a climate where people think it is showing support to people who have lost their hair by doing this too.
Even my own daughters offered to shave their heads when they knew I was to have chemo and lose my hair - talk about brainwashing!
I can't think of anything that would have made me more upset than to see them lose their hair too.
I have pretty much powered my way through 8 cycles of DC and had every side effect it could throw at me, one stay of a week in hospital, and four times they called me in because of various things, two bad reactions in the chair - but the one thing that reduced me to tears wasn't being told I had cancer, it was being told I would lose all my hair in the second week of the first cycle.
And I don't need to tell any of you how hateful I found having huge handfuls come out in the shower (and I had short hair so hadn't thought it would be so horrid).
And then your eyebrows and eyelashes go - and your femininity feels like it's being stripped away bit by bit.
Frankly I find people who say they will get their head shaved as support, and that say they do it to "share" our experience haven't a clue! They might choose this, we haven't chosen it - and wouldn't.
It may sound over the top to some of you, but I find this whole campaign offensive, insensitive and patronising - particularly seeing people smile while having their head shaved, and people cheering. I didn't smile, and my daughter and husband didn't feel like cheering when they shaved my head.
Ok I'm cool with my look now - the very shiny head (not a short razor clipped look) - but I would prefer not to have had to experience any of this.
If you agree - please let me know.
I have messaged Macmillan previously and never even had a response. I've commented on Facebook under their posts in the past urging people to find fun ways to raise money (and there are so many) and not to do this for me.........and there is always a huge response in terms of "likes" and comments from people in our reluctant community.
If people are with me - maybe we can convince Macmillan to stop this barbaric approach to fund raising. Either like this post or put a comment of support please - if you don't agree, that's fine, no need to do anything!
Well - that's my rant over - you might have noticed I feel a tad passionate about this!
UPDATE
I have had an email inviting me to discuss our concerns in a conversation with the Brave the Shave team next week.
Obviously there is a wealth of concern on this thread but please feel free to let me have comments, concerns ideas etc and I will do my best!
Any suggestions about alternative ways of raising money and campaign names which might capture the imagination of fund raisers are very welcome. I think it’s always a good idea to offer suggestions/solutions when being critical of something!
Brilliant news, Judy! Put your foot down with a firm hand and give 'em hell on our behalf!
I've had one too! So looks like they're beginning to listen. I'll be talking to them prob Tues pm.
J
I’ve had a similar email and will be chatting tomorrow lunchtime.
Again I think other ways and ideas of raising funds are needed rather than just slamming this one down. So my thinking cap is on, particularly of a snappy title!
Hugs xxx
Moomy
I am one to have Braved the shave:) I see nothing wrong in the add, esp if it helps people feeling left out or some other reason because their treatment has made them lose their hair, I know that women feel more uneasy about hair loss than men, brave the shave is about supporting those people, saying we are with you!
I am an incurable, and using Kemo will not make a difference for me, but I have braved the shave for those that have lost their HAIR.
There have been many alternative ways of fundraising suggested during the time this thread has been running, including further development/publicity of schemes which already exist. As part of this, it was established that the coffee mornings actually make more money in total than Brave the Shave because more people take part (even though individual shaves may raise more than individual coffee mornings).
're those in public eye getting involved what about this as a topic for the BBC " You, me and the By C" podcasts. May be something that bowelbabe and girlvscancer are interested in.
And If You haven't heard of them well worth a listen. They are brilliant.
Apologies. Darned autocorrect. Should have said...
You, me and the Big C podcast
I almost choked on my dinner with disbelief when the BTS ad came on twice in one ad break. I'd hoped that by only watching my fav programs on catch up I could avoid seeing it.
I had long, straight (and slightly greying) hair down to bottom before my diagnosis. After I was told I had to have chemo asap, I got it cut into a short bob and donated my hair to the Princess Trust (as I always did anyway). I wasn't particularly emotionally attached to my hair and I embraced the fact that I was going to lose it all. I even gave away all my hair products and threw away my razors etc. I thought I was prepared for the inevitable. 3 weeks after my 1st chemo, my hair started to fall out so I started wearing trendy scarfs/bandanas to hid the small gaps. After 3 weeks of shedding (waking up to a very hairy bed, moulting on public transport and at work, etc), I decided I'd had enough. Honestly, I never realised I had so much hair on my head, it was never-ending! So I asked my friend to shave the rest off. Although I was happy with my decision - especially after my hoover overheated and shorted out my electricity! - I wasn't fully prepared for the result. I looked like I'd been scalped by a toddler who wants a new barbie! Not because of my friend (she is a very skilled hairdresser), but because it highlighted how much hair I'd actually lost. I think I could've coped if I'd lost it all, but no, instead I had a very patchy bald head. Even worse was that I have a long scar down the centre of my scalp, which was now very visible and, as a few people (mainly men, I've noticed) have laughingly pointed out, it looks inappropriate around children. I'm sure you know what I mean. Needless to say, I kept my head covered when out of my house, rather reluctantly as it was during the intense heat of last summer. Additionally, all but 4 eyelashes fell out and my eyebrows were (and are as they still haven't grown back) practically non-existent ... well, at least they nearly matched my head!
And this is just one of the reasons why the BTS ad upsets me. I'm pretty sure they wouldn't have as many volunteers if they ended up looking like I did! Also, they all weirdly seem to have perfectly symmetrical heads, which baffles me. Or is this just me?
Can I just end by saying that almost a year on from this, my hair is growing back, it's very curly and I do love it. Other than that, I'm still pretty much hair-free and saving on razors etc.
Apologies if my post offends anyone, that isn't my intention. I'm just sharing my experience and thoughts.
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