Brain mets diagnosis

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  • 5 subscribers
  • Hi and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    It sounds like you've had an incredible lot to deal with and I can understand your feelings of wanting to have some control. I don't have secondaries, touch wood, but I didn't want to leave your post without a reply.

    Quite often the secondary groups are very quiet so you might want to join and post in the head and neck cancer group, if I've understood correctly what type of primary cancer you have.

    If this is something that you think might help, clicking on the link I've created will take you straight there where you can then join and post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.

    It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.


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  • Hi Latchbrook,

    Thank you for your reply. It means a great deal that you responded so quickly. 

    I’ll update my profile and then at some point I’ll post over in ‘Head & Neck’

    I’m attending the Marsden in Sutton, Surrey today at 15:00 for a mesh mask fitting as my Cyberknife radiosurgery commences in 10 days. I have to have further MRI (high resolution) and CT today so a 3-4 hour process. Another long, emotional day for me and my family. Heart breaking.

    Thanks again and will catch up with soon.

    Best wishes and love sent 



  • All the best with the mask fitting this afternoon. I'll be in the chemo suite having chemo at the same time as you're in hospital.

    I'll be thinking of you.


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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • I hope it goes as smoothly as it can for you, Latchbrook. Be thinking of you too MusclePunchBoom

    I attend Maggie’s very often. Bryn, Charmaine, Josie and the team have been great. X